- Messages
- 72
- Location
- Berkshire UK
After 10 years of living with ME I'm determined to try and stabilise and avoid crashes as I've been deteriorating over the past few years becoming sicker unable to even leave bed with the ME becoming unrelenting I.e. No break 24/7.
I'm redoing all the activity sheets and gearing down to try and find my baseline. What I'm wondering is whether there is a baseline or for some people may it be that literally surviving makes us sicker without having to do anything at all.
I just want to be realistic whilst I work towards hopefully finding a baseline, preventing relapses or entering them with more awareness. It is just so difficult to find the baseline when everyday life's challenges get in the way that cannot be anticipated with preemptive resting etc.
Thx
Sally
I'm redoing all the activity sheets and gearing down to try and find my baseline. What I'm wondering is whether there is a baseline or for some people may it be that literally surviving makes us sicker without having to do anything at all.
I just want to be realistic whilst I work towards hopefully finding a baseline, preventing relapses or entering them with more awareness. It is just so difficult to find the baseline when everyday life's challenges get in the way that cannot be anticipated with preemptive resting etc.
Thx
Sally