Deal.
And yes, I get pain in the same area when symptoms flare up. Kidney area, lower back, hips and the left thigh.
At the bare min, I'd def do a Leaky Gut (Intestinal Permeability) test >>>>> (Urine - Lactulose & Mannitol).
Okay may be another thread to start. I started looking up some of the immunodeficiencies that you mentioned earlier like the x linked lymphoproliferative syndrome, but I couldn’t find anything about a 1 and 2. But I mean, from what I have read that sounds like a big possibility. Is there a particular test for it?
For starters, you def want to do Immunoglobulin test for IgE, IgG, IgM, IgA, maybe IgD as well. (IgE = T Cell DIsorder?)
I have suffered from severe pain since my initial EBV illness when I was 14. For years I was told I had fibromyalgia, but according to some doctors there are trigger points for that which I don’t respond to. Excruciating pain, migraines, and exhaustion have been my biggest enemy when it comes to this illness.
I am also suffering from sciatica now and it has moved to my right side as well. I still think my sacroiliac joint is a huge possibility, but the timing of when my illness got out of control seemed to be all too coincidental. It travels from like you said around the lower back to my hips, but also my pelvic and groin area. Have you had blood tests suggest that there is something going on with your kidneys? The only thing that ever showed up in my blood test was that my cortisol was high, which as you may know is what is made my your adrenal glands that sit on top of your kidneys. My doctor just gave me a steroid retested me, then my cortisol was low. That’s the only thing that’s ever shown up in my blood test suggesting something is going on with my organs.
And the IgM and IgG is for EBV right? Or a different kind? If it’s the one for EBV you think it’s a good idea to get these retested?
Dude. Be careful on the steroid shots. Apparently, that can sometime increase the virulence in some cases. Like, I'm convinced that my CFS was initially caused by an enterovirus that grew after I got corticosteroid shots. Just sayin!!
It's different. Those were IgG antibodies against EBV specifically.
That’s so crazy! She gave me an oral steroid for my high cortisol levels, but prior to that I did get like an antibiotic shot because she was convinced I had appendicitis back in February when this whole thing started. I initially had this huge stomach thing at that time and that right after that around March (I may have said April earlier, but it was actually March) I started having the lower back pain, then she diagnosed me with EBV again AND high cortisol and then gave me the oral steroid.
Oh okay got it.
My last blood test I had showed that some of my my platelets were low such as WBC etc as well, but my doctor didn’t say anything about it I didn’t find out until I got a copy of my test results
Yes, and I also did a bone marrow biopsy. Whatever it is, they don’t seem worried about it.My last blood test I had showed that some of my my platelets were low such as WBC etc as well, but my doctor didn’t say anything about it I didn’t find out until I got a copy of my test results
Were you given any drugs after the surgery @EddieB or any other treatment?
I had bronchitis a couple times too and, yeah, they gave me a fever as well. But EBV and all the other viruses and all my other health issues, never give me a fever.
Yes. I was on an antibiotic for a short time after the surgery. When the symptoms returned, I went back on it, but no help.
