November Girl
Senior Member
- Messages
- 328
- Location
- Texas
I've had this for a few decades now. I usually have other head pain also, and often bad neck and shoulder pain, but this never goes away..
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I have had a lot of pain and inflammation in my spine, especially base of skull and between shoulder blades. Also tightness and restriction. It has taken me ages to realise the feelings I was getting stemmed from these areas.They seemed to flow or trickle from my skull, down my back, then sort of out around my shoulders and below, as if it was something taking hold and absorbing me.
I then watched a dvd, cant remember what is it called at the moment,(voices/shadows/me??) anyway, it mentioned a few people with cfs/me had deep dorsal ganglionitis, so after a bit of googling, wondered if a spinal check would be a good idea.
So, I booked one, found c2 c3 and c4 were misaligned, and had a lot of tight trigger points and a slight rotation in my right hip/pelvis.
The next few weeks I found less pain and strange feelings in my body. I had a second treatment two weeks from first one, much much better and straighter, T3 and T4 needed slight adjustment.
Again I felt a lot better physically. He said i didnt need to see him for another month and that would be like a top up, but I personally felt I needed one earlier just incase anything had slipped back into its old ways, so am having another session tomorrow.
Over the past few years, before I realised I was ill, I thought I was just getting older, hence the aches and pains, and my body had had a few accidents, i rolled my vehicle, had a nasty fall from my pony, and the general knocks and scrapes, so I thought it was just the way I was going to be for ever.
Am so pleased I had the spinal check, and followed it through, and would recommend anyone with pain or restriction in spine or head to get checked. I used a guy who is osteo and mctimnony.
Hey November Girl,
Yes, that is my number one pain/symptom. I feel as if it is weighing me down with a thousand pounds, and I kind of feel if only I could cut that part of my head out then everything would be okay :-(.
I unfortunately do not have much advice for what it is or how to deal with it. However, a few years ago I went to a skilled doctor of osteopathy who did chranial-sachrial therapy. I had major improvements on the pain and sensory senses, but unfortunately it only lasted each time for two or three days before hitting back. Also, my vision changed. (I rewent to another one after I moved, but had no luck with that one. I guess some are more skilled than others. Also, I was told that those with a DO can do a lot better than those who just know the therapy, as it involves moving the spinal fluid throughout the body)
Good luck. If I find anything else that helps, I'll let you know.
Lo
yep I have it, awful pain is one of my top complaints, besides the oxygen hunger which waxes and wanes throughout day and life. I think it is from neck injury from chiro manip that preceded my fms/cfs and found out have cerv stenosis and djd after and some hypermobility. cranial sacral increases the pain, maybe it increases spinal fluid and pressure. Dr Wood in Seattle has interesting theory on neck and fms and so did Dr Rosner and Dr Heffez 12 yrs ago.
Dainty, I used to see a practioner who does "fascial integrative therapy" which combines cranial-sacral work with myofascial work and other things. Frankie is licensed as an OT, and has studied several types of body work. Her work helped me immensely. I had severe body-wide stiffness and pain . It's been a few years, and I'd love to go back for some more sessions, but the $120 non-insured cost is an impediment - along with the hour's drive to get there. It's more likely that Medicare will cover a DO. Next year I'll be back on standard Medicare, so that will broaden my options.
I have had a lot of pain and inflammation in my spine, especially base of skull and between shoulder blades. Also tightness and restriction. It has taken me ages to realise the feelings I was getting stemmed from these areas.They seemed to flow or trickle from my skull, down my back, then sort of out around my shoulders and below, as if it was something taking hold and absorbing me.
I then watched a dvd, cant remember what is it called at the moment,(voices/shadows/me??) anyway, it mentioned a few people with cfs/me had deep dorsal ganglionitis, so after a bit of googling, wondered if a spinal check would be a good idea.
So, I booked one, found c2 c3 and c4 were misaligned, and had a lot of tight trigger points and a slight rotation in my right hip/pelvis.
The next few weeks I found less pain and strange feelings in my body. I had a second treatment two weeks from first one, much much better and straighter, T3 and T4 needed slight adjustment.
Again I felt a lot better physically. He said i didnt need to see him for another month and that would be like a top up, but I personally felt I needed one earlier just incase anything had slipped back into its old ways, so am having another session tomorrow.
Over the past few years, before I realised I was ill, I thought I was just getting older, hence the aches and pains, and my body had had a few accidents, i rolled my vehicle, had a nasty fall from my pony, and the general knocks and scrapes, so I thought it was just the way I was going to be for ever.
Am so pleased I had the spinal check, and followed it through, and would recommend anyone with pain or restriction in spine or head to get checked. I used a guy who is osteo and mctimnony.