Hello all. I hope everyone is feeling the best you can feel today. I live in a very rural part of WV and have been unable to find a doctor in the state or around the state to see for my chronic fatigue. My regular doctor diagnosed me with CFS a month ago after me being exhausted since 2010. Now she wants me to see a specialist (I think she just wants to hand me off to someone else so I won't be her problem anymore) but she doesn't know who treats CFS around here and I've been looking for weeks and calling rheumatologists and can't find anyone. Any suggestions are greatly appreciated and if anyone else in WV is suffering with CFS, I'd love to start a support group around here.
Thanks.
I'm in the area. By 'very rural', are we talking Dodderidge? Pocahontas?
There's no need to make it sound like a diagnosis and treatment have to be incredibly complicated and expensive.
@Valentijn is right. I know someone in WV who is quite good, and there are quite a few people closer to the rural areas I mentioned that might be able to help you if you can't make it to the guy I'm thinking of; feel free to PM me.
Also for the dysautonomia (OI) you have Ohio, Cleveland Clinic.
Nooooo, really. Don't. Unless you are 99.9% sure that's what you have. Had a pretty bad experience there.
Though rural, WV / Ohio was one of the last active sites of osteopathic medicine, and we have a weird concentration of very open-minded holistic physicians for such a thinly-populated state. You just have to know where to look.
-J
