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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Doctors in and around London, UK

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frogsquid13

Messages
13
i've seen both weir and bansal, weir in person in his office at harley street and bansal online.

for weir, i think he's got a fairly bog standard approach. he assumed i didn't know what me/cfs was so had a powerpoint prepared to prove it's a physical illness. he's a fairly old man at this point so i didn't have the heart to tell him i know everything about it. he had some generic supplements recommendations, but i don't think he'll prescribe things based on your particular individual case. what i think he's good for is official diagnosis, and for people completely new to me/cfs and want to see a first doctor. now that seems to run contrary to what has been posted in this thread so far, so i might be wrong on this and maybe didn't ask the right sorts of questions. i inquired about abilify treatment but was deemed not severe enough. not a bad appointment by any means, but not hugely helpful either.

bansal was great as a first appointment. he tries to work out your particular case and also said he would think more about it during his off time which made me feel great. like you're not just another generic case, here's some supplements and out the door you go. he definitely didn't try to pawn off any cbt/get stuff as mentioned earlier in this thread - maybe he's learnt better during those years? i should say my case isn't typical ME (can find my intro post for more info) which might have prompted this thoughtfulness from him. for example i don't have any kind of viral or immunology issues, and feel i have more of a neurological condition. but he said the treatment won't change much, because i still fit a lot of criteria for ME. to that end, i'll be trying B12 injections (also recommended by weir), a course of steroids, and some supplements i haven't heard of. it's not amazing treatment prospects, but i'm happy that he'll continue to think on it and provide recommendations incase that stuff doesn't work. so all in all, i'd definitely recommend dr bansal if you can get an appointment, and probably less so dr weir.
 
godlovesatrier

godlovesatrier

Senior Member
Messages
2,554
Location
United Kingdom
Dr Bansal - yes I see him he prescribes me valtrex and he's given me an insomnia drug so I can finally get some sleep (the new drug works better than anything else I've ever taken). Dr Bansal has also prescribed me low dose doxycycline which was really very important post covid, it helped me get back to work much faster. And low dose abilify which I'll try next month. He also recommends vitamin e, d and PEA (mainly for pain I believe, which I dont suffer from). He recommends curcumin and vitamin e to effect WASF3, however I don't tend to tolerate the curcumin so I just stick with the vitamin e.

RE dr bansal retiring I didn't know that, but he isn't taking on new patients. I do think he's been very overwhelmed so I can't say I am surprised. Guess we will all be going to taylor then!

Dr Claire Taylor (uk telemedicine like Bansal) bit more costly but she specialises in neuroscience and pots so you get possibly better POTS meds from her, I'd assume.
 
BrightCandle

BrightCandle

Senior Member
Messages
1,154
godlovesatrier said:
Dr Claire Taylor (uk telemedicine like Bansal) bit more costly but she specialises in neuroscience and pots so you get possibly better POTS meds from her, I'd assume.
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She is well versed on MCAS and POTS and definitely prescribes on those two sub conditions. I don't think she is aware of the other historical Myhill end of research for ME so you likely wont get Valtrex or supplement recommendations from her.
 
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