Hello all! This is my first post, though I've been lurking for awhile.
I was wondering if anyone had recommendations for a good CFS doc near Stamford, CT.
I have not been diagnosed w/ anything, but my symptoms make me highly suspect CFS and/or Lyme. (I have included an overview of my history at the end of my post, including a visit to an LLMD).
Basically, I am looking for a doctor who is knowledgeable and up-to-date on CFS (XMRV, etc), open-minded, and competent (knows what tests to run for both diagnostic and treatment purposes, and how to address any abnormalities).
I know you're all going to say: "Simple, just go see your PCP"
I've run into the names of two NYC docs: Dr. Enlander and Dr. Levine. Any thoughts on them?
I'm also near the Fibro & Fatigue Center in Norwalk, CT. I don't know what to make of this place since my research seems to indicate that it is very expensive and yields, at best, modest improvements.
And lastly, any thoughts on whether I should re-open my Lyme investigation?
Thank you in advance!
Asleep
*************************
History:
Labs
Positive EBV IgG, IgM in both 11/07 and 7/09
Positive HHV6 IgG in 7/09
Positive Mycoplasma Pneumonia IgG in 7/09
Negative for CMV, Toxoplasma in 7/09
Recent MRI negative for MS-like lesioning, but found incidental pineal cyst
Lyme
Saw a NY LLMD in 7/09. Concluded that Lyme tests were indeterminate, but that lyme was a clinical possibility. I did not pursue treatment at the time.
Western Blots: Igenex had band 41 on IgG and IgM, Stony Brook had bands 41, 34, 58, 64, 66 for IgM and 28, 41, 58 for IgG.
Barely reactive babesia duncani serology.
Barely reactive ehrlichia chaffeensis IgM (in 11/07)
Symptoms
I have symptoms from every category on the aboutmecfs.org CFS symptoms page. My main symptoms are severe cognitive issues, fatigue, unrefreshing sleep, and feelings of pressure in my head and in the back of my neck.
I was wondering if anyone had recommendations for a good CFS doc near Stamford, CT.
I have not been diagnosed w/ anything, but my symptoms make me highly suspect CFS and/or Lyme. (I have included an overview of my history at the end of my post, including a visit to an LLMD).
Basically, I am looking for a doctor who is knowledgeable and up-to-date on CFS (XMRV, etc), open-minded, and competent (knows what tests to run for both diagnostic and treatment purposes, and how to address any abnormalities).
I know you're all going to say: "Simple, just go see your PCP"
I've run into the names of two NYC docs: Dr. Enlander and Dr. Levine. Any thoughts on them?
I'm also near the Fibro & Fatigue Center in Norwalk, CT. I don't know what to make of this place since my research seems to indicate that it is very expensive and yields, at best, modest improvements.
And lastly, any thoughts on whether I should re-open my Lyme investigation?
Thank you in advance!
Asleep
*************************
History:
Labs
Positive EBV IgG, IgM in both 11/07 and 7/09
Positive HHV6 IgG in 7/09
Positive Mycoplasma Pneumonia IgG in 7/09
Negative for CMV, Toxoplasma in 7/09
Recent MRI negative for MS-like lesioning, but found incidental pineal cyst
Lyme
Saw a NY LLMD in 7/09. Concluded that Lyme tests were indeterminate, but that lyme was a clinical possibility. I did not pursue treatment at the time.
Western Blots: Igenex had band 41 on IgG and IgM, Stony Brook had bands 41, 34, 58, 64, 66 for IgM and 28, 41, 58 for IgG.
Barely reactive babesia duncani serology.
Barely reactive ehrlichia chaffeensis IgM (in 11/07)
Symptoms
I have symptoms from every category on the aboutmecfs.org CFS symptoms page. My main symptoms are severe cognitive issues, fatigue, unrefreshing sleep, and feelings of pressure in my head and in the back of my neck.