roxie60
Senior Member
- Messages
- 1,791
- Location
- Central Illinois, USA
I am trying to have realistic expectations and I dont think I do so I have some questions for those who are trying methods to improve you health/quality of life. Please answer if you feel comfortable. My answers in blue.
1. How did you feel when you started trying to address your CFS/ME or other health issues?
a. 0-10% bedridden most of the time
b. 10-30% function at low level 3-4 hrs a day, showering is major accomplishment
c. 40-50% function 6-8 hrs a day, a few tasks around home, maybe grocery trip
d. 60-80% function 10-15 hrs, work part or full time, able to drive short distances
e. 90-100% function almost at normal level of energy, able to sleep
This last 'episode' that lasted 5-6 months, first month a.
2. Using same letters above how do you feel after being on your plan/protocol?
The last month somedays c., somedays d.
3. How long have you been on the protocol and do you attribute your improvement to your protocol?
3 months, not sure if just normal non-flareup time. I do believe eliminating the foods identified as allergic/sensitive to took away 80% of my joint/muscle pain.
4. Are you fighting this battle alone or do you have support from others in your life?
alone (so I am grateful for members here at PR)
5. Do you feel continuous improvement or do you have some good days and bad days?
good and bad days, but seem to feel more defeated this time, more depressed, not hopeful
6. Did / are you symptom free? Is that a realistic expectation for me to expect to be as well as I once was (much older now, probably chronic illness for 15-20 yrs just did not acknowledge nor did I have tests to show anything other than mono)?
I am not symptom free after 3 months or more (on Metanx and MB12 since April) but have some improvement
1. How did you feel when you started trying to address your CFS/ME or other health issues?
a. 0-10% bedridden most of the time
b. 10-30% function at low level 3-4 hrs a day, showering is major accomplishment
c. 40-50% function 6-8 hrs a day, a few tasks around home, maybe grocery trip
d. 60-80% function 10-15 hrs, work part or full time, able to drive short distances
e. 90-100% function almost at normal level of energy, able to sleep
This last 'episode' that lasted 5-6 months, first month a.
2. Using same letters above how do you feel after being on your plan/protocol?
The last month somedays c., somedays d.
3. How long have you been on the protocol and do you attribute your improvement to your protocol?
3 months, not sure if just normal non-flareup time. I do believe eliminating the foods identified as allergic/sensitive to took away 80% of my joint/muscle pain.
4. Are you fighting this battle alone or do you have support from others in your life?
alone (so I am grateful for members here at PR)
5. Do you feel continuous improvement or do you have some good days and bad days?
good and bad days, but seem to feel more defeated this time, more depressed, not hopeful
6. Did / are you symptom free? Is that a realistic expectation for me to expect to be as well as I once was (much older now, probably chronic illness for 15-20 yrs just did not acknowledge nor did I have tests to show anything other than mono)?
I am not symptom free after 3 months or more (on Metanx and MB12 since April) but have some improvement