outdamnspot
Senior Member
- Messages
- 924
@be_lovely_ I'm in Australia, so the test isn't covered unfortunately.
@BeADocToGoTo1 I'm aware zero carb isn't healthy and appreciate the reading material suggestions but I didn't end up at this point out of choice. I'm profoundly intolerant to histamine, salicylates, carbohydrates, eggs, nuts, dairy, seeds and fiber, which rules out almost every food other than meat. And slowly reintroducing these foods, as the specialist and my doctor suggested, seems completely pointless because a) I'm effectively bedridden and can't function in my current state, so hardly have the patience to be messing around with eating like 1 teaspoon of peanut butter a day in the hopes of eventually tolerating it, and b) my understanding is that there is a kind of 'bucket' involved in these things and once it fills up you get symptoms, so I can't see how going slower and building up would really stop me eventually getting sick from these foods, not to mention the cross-reactivity.
Australian doctors seem to have this paradoxically harmful 'do no harm' mentality which effectively lays the blame on the patient. I don't see it as my responsibility anymore to try and tolerate foods when I've been living like this for 7 months -- alternating between eating carbs/histamine/salicylates to try and function (in my limited state) and ending up with almost psychotic depression/anxiety as a result; or cycling onto zero carbs and seeing huge improvement in symptoms but becoming so weak I can't even do stuff around the house. Neither 'state' leaves me able to function at all and they are both profoundly distressing and cognitively disabling, so I end up stuck in the house, unable to plan anything beyond trying to get to the next day, pray I don't have some awful reaction to a food etc. (and I'm so cognitively challenged now I wouldn't be able to read the books you mention or even listen to a podcast).
I apologize if I sound irritated at you; I'm not. I'm just angry things can reach this point and after making it out to see my doctor her idiotic suggestion is to 'eat more fiber'. Why not just do a trial of Rifaximin, since it's obvious I can't exist in this state forever? I've done so much other absurd stuff to my body and can barely eat, so I can't envision how much worse an antibiotic could make me.
@BeADocToGoTo1 I'm aware zero carb isn't healthy and appreciate the reading material suggestions but I didn't end up at this point out of choice. I'm profoundly intolerant to histamine, salicylates, carbohydrates, eggs, nuts, dairy, seeds and fiber, which rules out almost every food other than meat. And slowly reintroducing these foods, as the specialist and my doctor suggested, seems completely pointless because a) I'm effectively bedridden and can't function in my current state, so hardly have the patience to be messing around with eating like 1 teaspoon of peanut butter a day in the hopes of eventually tolerating it, and b) my understanding is that there is a kind of 'bucket' involved in these things and once it fills up you get symptoms, so I can't see how going slower and building up would really stop me eventually getting sick from these foods, not to mention the cross-reactivity.
Australian doctors seem to have this paradoxically harmful 'do no harm' mentality which effectively lays the blame on the patient. I don't see it as my responsibility anymore to try and tolerate foods when I've been living like this for 7 months -- alternating between eating carbs/histamine/salicylates to try and function (in my limited state) and ending up with almost psychotic depression/anxiety as a result; or cycling onto zero carbs and seeing huge improvement in symptoms but becoming so weak I can't even do stuff around the house. Neither 'state' leaves me able to function at all and they are both profoundly distressing and cognitively disabling, so I end up stuck in the house, unable to plan anything beyond trying to get to the next day, pray I don't have some awful reaction to a food etc. (and I'm so cognitively challenged now I wouldn't be able to read the books you mention or even listen to a podcast).
I apologize if I sound irritated at you; I'm not. I'm just angry things can reach this point and after making it out to see my doctor her idiotic suggestion is to 'eat more fiber'. Why not just do a trial of Rifaximin, since it's obvious I can't exist in this state forever? I've done so much other absurd stuff to my body and can barely eat, so I can't envision how much worse an antibiotic could make me.
