Am I missing a trick here? The ICC, is an improved version of the CCC, with no room for psychiatry - hoorah.
We have been calling this illness 'ME' for years, even through the ME/cfs, cfs/ME, cfs etc psyco era - What has changed? The Canadian Criteria, was never accepted in the UK, so how will the release of the ICC change anything? The Shrinks will never allow it.
As everyone on the forum already knows, pardon me for repeating, but, (if you don't want to read the usual rant then please ignore the next 3 paragraphs - please feel free to join me in my mantra) - using the 'boiling frog' method, the UK Government, the TV & Press - (embarrasing shisters), and the National Health Service & NICE aka the drugsters, have been utterly brainwashed by Wessely & Co, into accepting that the shrink version of ME, the 'all in the mind' illness, is the accepted 'base line' that medical science must disprove. Anything other than the psychiatry description is just theory - sorry, but when did the psychiatry model become 'fact'?
With nothing other than subjective opinion and flawed data manipulation, psychiatry's incorrect illness beliefs have evolved to become the standard model for this illness. As far as they are concerned, until proven otherwise, the illness ME (they will never refer to it with this label) is psycological, and no medical authority dares to question that 'fact' - nor would they use the ICC in patient selection criteria for research. The MRC will chose 'Oxford' everytime because that's what they always use.
XMRV clearly showed this - Wessely was immediately sure there was no XMRV in the UK - all of his patient population would prove negative because they would just be fatigued - the current scientific model in the UK, by design, selects false positives as the majority population.
the ICC does not in itself provide new evidence - ANY findings from subsequent research will just be denied in the usual way, ie : a 'breaking news' story on the Beeb and in a couple of the daily rags followed by a NICE/NHS spokesperson saying that 'evidence based' research shows that with a chat & some GET, some people improve enough to return to a minimum wage existence (if they can find an employer brave enough to offer a position to someone who can't turn up for work, or the interview in the first place or sit through the interview, or drive to work safely, or last for more than 1 day/hour without collapsing in a heap).
I don't have a response concerning the ICC from my local quack yet - she is slowly becomming more aware - its taken 7 years to ween her from the dark-side. She accepted the government version of the illness when she met us - never gave it a second thought. As far as she was concerned, any serious medical professional believes the mantra from the peer reviewed (ha) Lancet & BMJ. 99% of UK medical operatives (robots) totally believe the instructions from above.
BTW Cort - ta for removing the gagging order - even us nutty carers need to let go sometimes - this forum is about the only opportunity I get to talk/argue with someone who has any idea what I'm on about when discussing ME.
I think I'll wait for the outcome of the September gig in Ottawa before getting a balloon out.
Sorry to put a damp'ner on the beach party - had a bad day.
Suzy - whaddya mean its your last post?
We have been calling this illness 'ME' for years, even through the ME/cfs, cfs/ME, cfs etc psyco era - What has changed? The Canadian Criteria, was never accepted in the UK, so how will the release of the ICC change anything? The Shrinks will never allow it.
As everyone on the forum already knows, pardon me for repeating, but, (if you don't want to read the usual rant then please ignore the next 3 paragraphs - please feel free to join me in my mantra) - using the 'boiling frog' method, the UK Government, the TV & Press - (embarrasing shisters), and the National Health Service & NICE aka the drugsters, have been utterly brainwashed by Wessely & Co, into accepting that the shrink version of ME, the 'all in the mind' illness, is the accepted 'base line' that medical science must disprove. Anything other than the psychiatry description is just theory - sorry, but when did the psychiatry model become 'fact'?
With nothing other than subjective opinion and flawed data manipulation, psychiatry's incorrect illness beliefs have evolved to become the standard model for this illness. As far as they are concerned, until proven otherwise, the illness ME (they will never refer to it with this label) is psycological, and no medical authority dares to question that 'fact' - nor would they use the ICC in patient selection criteria for research. The MRC will chose 'Oxford' everytime because that's what they always use.
XMRV clearly showed this - Wessely was immediately sure there was no XMRV in the UK - all of his patient population would prove negative because they would just be fatigued - the current scientific model in the UK, by design, selects false positives as the majority population.
the ICC does not in itself provide new evidence - ANY findings from subsequent research will just be denied in the usual way, ie : a 'breaking news' story on the Beeb and in a couple of the daily rags followed by a NICE/NHS spokesperson saying that 'evidence based' research shows that with a chat & some GET, some people improve enough to return to a minimum wage existence (if they can find an employer brave enough to offer a position to someone who can't turn up for work, or the interview in the first place or sit through the interview, or drive to work safely, or last for more than 1 day/hour without collapsing in a heap).
I don't have a response concerning the ICC from my local quack yet - she is slowly becomming more aware - its taken 7 years to ween her from the dark-side. She accepted the government version of the illness when she met us - never gave it a second thought. As far as she was concerned, any serious medical professional believes the mantra from the peer reviewed (ha) Lancet & BMJ. 99% of UK medical operatives (robots) totally believe the instructions from above.
BTW Cort - ta for removing the gagging order - even us nutty carers need to let go sometimes - this forum is about the only opportunity I get to talk/argue with someone who has any idea what I'm on about when discussing ME.
I think I'll wait for the outcome of the September gig in Ottawa before getting a balloon out.
Sorry to put a damp'ner on the beach party - had a bad day.
Suzy - whaddya mean its your last post?