During PEM attacks in the past, my skeletal muscles became paralyzed. I would breath strangely as well, or I just noticed it more. Now I get long daily attacks in which my body feels like it's shutting down.
During this time:
*I feel a panic at the same time I take some, if not all breaths. I think the panic causes my brain to take a breath.
*Stretching my legs while lying down is enough to cause my heart to race for a few seconds like in orthostatic hypotension.
*Turning over causes a sensation of blood moving from one side to another.
*While I'm falling asleep or still asleep, I wake up in shock. I can wake up drenched in sweat although I sweat very little.
*I notice my heart more during PEM and it feels like it's "not on solid ground" and that it can stop beating sufficiently if I'm pushed too far. However, it's not slow but on the fast side with normal EKG.
*Afraid of compressing or lying on left chest because of the pressure on the heart.
When I exercised last summer, the functionality of brain areas that move certain muscles got damaged. Likewise, the functionality of critical functions will get damaged as well. Though, death may result before that happens.
This "dysautonomia", if you'd call it that, only occurs during PEM. I don't have POTUS, yet even sitting takes a toll on me and I need to lie down almost all the time. If that system were to deteriorate due to being in an upright position a lot, I would develop POTUS. Just as I'd deteriorate from receiving strong shocks from my body so my brain continues to keep my heart beating or keep me breathing.
I've heard of different specific systems being damaged in people with ME/CFS. For example, stomach paralysis and paralysis of the pupils. I wonder if some but not other people with ME/CFS die of heart failure because the brain function gets damaged. After all, although heart failure is more common in ME/CFS, there are many who are very disabled but don't experience it, despite strong factors like being sedentary and isolated coming into play.
During this time:
*I feel a panic at the same time I take some, if not all breaths. I think the panic causes my brain to take a breath.
*Stretching my legs while lying down is enough to cause my heart to race for a few seconds like in orthostatic hypotension.
*Turning over causes a sensation of blood moving from one side to another.
*While I'm falling asleep or still asleep, I wake up in shock. I can wake up drenched in sweat although I sweat very little.
*I notice my heart more during PEM and it feels like it's "not on solid ground" and that it can stop beating sufficiently if I'm pushed too far. However, it's not slow but on the fast side with normal EKG.
*Afraid of compressing or lying on left chest because of the pressure on the heart.
When I exercised last summer, the functionality of brain areas that move certain muscles got damaged. Likewise, the functionality of critical functions will get damaged as well. Though, death may result before that happens.
This "dysautonomia", if you'd call it that, only occurs during PEM. I don't have POTUS, yet even sitting takes a toll on me and I need to lie down almost all the time. If that system were to deteriorate due to being in an upright position a lot, I would develop POTUS. Just as I'd deteriorate from receiving strong shocks from my body so my brain continues to keep my heart beating or keep me breathing.
I've heard of different specific systems being damaged in people with ME/CFS. For example, stomach paralysis and paralysis of the pupils. I wonder if some but not other people with ME/CFS die of heart failure because the brain function gets damaged. After all, although heart failure is more common in ME/CFS, there are many who are very disabled but don't experience it, despite strong factors like being sedentary and isolated coming into play.