Hope_eternal
Senior Member
- Messages
- 291
I know this is a shot in the dark because I’ve posted a similar thread earlier. I’m just struggling with a med change decision for my son. I’ve read about Whitney Dafoe and his very unfortunate decline after trying a new treatment and it has left me terrified. Goodness my heart cries for him that that happened. Now my son’s gastro insists he change his current medication to a new one which requires 3 infusions of a biologic at high doses over the next 3 months then he will go to at home injections every 8 weeks. My blood goes cold thinking how this could affect him. I scour the internet searching for reassurance but can’t find any information at all. I’m a nervous wreck!! I’ve asked doctors but they don’t know. I really don’t want to take the chance and have things go worse for him. I know it seems there aren’t many ME members if any that have Crohns here. I’ve searched Crohns forums as well. I guess I’m hoping you guys might have some helpful suggestions or information or guidance. I’ve cried many anxious tears over this decision. Thank so much ❤️