helperofearth123
Senior Member
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- 202
After the Rituximab study failed to find a treatment I started to try other things. I tried diazepam with fascinating and tantalising results, so far. Experiment in progress.
I took 1 10mg of diazepam on day 1. I felt what you would expect, muscle aches completely gone and there was a very small improvement in brain fog, but no more energy and muscle aches are only a minor symptom for me. Disappointing.
Day 2. Took 10mg again and went for a short walk. Found I couldn't walk any further than usual (about 10 mins) but when I got back the PEM didn't happen which usually is the form of much worse muscle aches and worse brain fog. I just felt similar to how I felt before the walk. So valium is good for my PEM but that's it. Still disappointing as its far too addictive to be worth taking for taking that symptom away.
That same evening I took another 10mg pill and went to sleep but I only slept for 2 hours.
When I woke up I was shocked. My symptoms had largely vanished. I was massively better. For the first time in years it felt like I had had refreshing sleep. Like my body had healed in the night the way it is supposed to.
I went on a double length walk that day (without taking any more valium - so this is the day after I took it). I had no PEM. I wrote a 2 and a half page letter to my MP about complex stuff. I walked to the post box on foot. No PEM. Amazing. Note that I have been in an energy crash for the past 2 months and haven't been able to do any writing or walking at all! Almost entirely housebound and cognitively ruined.
That evening it started to come back though at about 4pm I started to feel a bit iffy. By 6pm I was feeling like my same rough self. I thought it could be because I only slept for 2 hours, maybe a full nights sleep with valium in my system while I slept would help even more. So I took another valium at 6pm and another at 10pm and fell asleep at 11pm.
Unfortunately when I woke up, which is today, I was very disappointed. It hadn't worked. I could feel straight away I felt like my usual exhausted self. A little better than usual but nothing like the amazing boost I had the day before. Right now it feels similar to my pre-crash energy level so it has still dug me out of a hole but nowhere near yesterdays effects.
I thought maybe its because of tolerance. So I'm going to have a break and try it again in about 5 days to make sure I have no tolerance.
And don't worry I don't have enough pills to get addicted.
Pretty amazing though that 2 hours of refreshing sleep is all it takes for my crippling ME/CFS to be massively reduced.
Isn't this intriguing?
Any one else have a similar experience? I've done some googling today and found that people to take valium or other benzodiazepines sometimes get a kind of re-bound where they feel great when it wears off. Though I must point out I didn't feel "high" at all. My symptoms were simply much much better.
Any thoughts or comments?
Thanks for reading
I took 1 10mg of diazepam on day 1. I felt what you would expect, muscle aches completely gone and there was a very small improvement in brain fog, but no more energy and muscle aches are only a minor symptom for me. Disappointing.
Day 2. Took 10mg again and went for a short walk. Found I couldn't walk any further than usual (about 10 mins) but when I got back the PEM didn't happen which usually is the form of much worse muscle aches and worse brain fog. I just felt similar to how I felt before the walk. So valium is good for my PEM but that's it. Still disappointing as its far too addictive to be worth taking for taking that symptom away.
That same evening I took another 10mg pill and went to sleep but I only slept for 2 hours.
When I woke up I was shocked. My symptoms had largely vanished. I was massively better. For the first time in years it felt like I had had refreshing sleep. Like my body had healed in the night the way it is supposed to.
I went on a double length walk that day (without taking any more valium - so this is the day after I took it). I had no PEM. I wrote a 2 and a half page letter to my MP about complex stuff. I walked to the post box on foot. No PEM. Amazing. Note that I have been in an energy crash for the past 2 months and haven't been able to do any writing or walking at all! Almost entirely housebound and cognitively ruined.
That evening it started to come back though at about 4pm I started to feel a bit iffy. By 6pm I was feeling like my same rough self. I thought it could be because I only slept for 2 hours, maybe a full nights sleep with valium in my system while I slept would help even more. So I took another valium at 6pm and another at 10pm and fell asleep at 11pm.
Unfortunately when I woke up, which is today, I was very disappointed. It hadn't worked. I could feel straight away I felt like my usual exhausted self. A little better than usual but nothing like the amazing boost I had the day before. Right now it feels similar to my pre-crash energy level so it has still dug me out of a hole but nowhere near yesterdays effects.
I thought maybe its because of tolerance. So I'm going to have a break and try it again in about 5 days to make sure I have no tolerance.
And don't worry I don't have enough pills to get addicted.
Pretty amazing though that 2 hours of refreshing sleep is all it takes for my crippling ME/CFS to be massively reduced.
Isn't this intriguing?
Any one else have a similar experience? I've done some googling today and found that people to take valium or other benzodiazepines sometimes get a kind of re-bound where they feel great when it wears off. Though I must point out I didn't feel "high" at all. My symptoms were simply much much better.
Any thoughts or comments?
Thanks for reading
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