Shoshana
Northern USA
- Messages
- 6,035
- Location
- Northern USA
I am so sorry that you have this terrible degree of pain and suffering, @Starsister
That would make anyone do things they don't ordinarily do.
But we DO care, and we do want to know, and we do want you to hang on and keep trying.
And to not take any more, when the meds are not helping.
Living alone makes this sort of thing worse too, for you, though normal other people do not comprehend, even if they lived with you, but WE DO understand. And of course, you need someone to tell.
We know that you helped others and still do, whenever you can.
I just this minute saw this thread for the first time,
and I was able to read some of it, so far.
I hope some of the ideas others gave, will help you. Any of them are worth trying,
because YOU are worth it!
We do know that much.
I do get burning and needle-pick pain, which is dreadful when I have it.
I use cold and ice packs, and it is very hard to bear.!
While I don't think I have it as widespread over entire body at same time, as you describe. And not as often, But I do get those painful symptoms.
We all know how real and how terrible it is, whether we get it or not, and whether we get it as badly. I am sure there are others who do.
We definitely care , about YOU.
That would make anyone do things they don't ordinarily do.
But we DO care, and we do want to know, and we do want you to hang on and keep trying.
And to not take any more, when the meds are not helping.
Living alone makes this sort of thing worse too, for you, though normal other people do not comprehend, even if they lived with you, but WE DO understand. And of course, you need someone to tell.
We know that you helped others and still do, whenever you can.
I just this minute saw this thread for the first time,
and I was able to read some of it, so far.
I hope some of the ideas others gave, will help you. Any of them are worth trying,
because YOU are worth it!
We do know that much.
I do get burning and needle-pick pain, which is dreadful when I have it.
I use cold and ice packs, and it is very hard to bear.!
While I don't think I have it as widespread over entire body at same time, as you describe. And not as often, But I do get those painful symptoms.
We all know how real and how terrible it is, whether we get it or not, and whether we get it as badly. I am sure there are others who do.
We definitely care , about YOU.