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Dehydration

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I found out that I have likely been chronically dehydrated - even drinking 2 litres inc electrolytes every day! One day I retained zero fluid.
Now drinking 3.5 to 4 litres with about half of that using banana bag sachet, dioralyte, salt/glucose and retaining between 0.5 to 1.2 litres.
Given that I am bedridden and not moving around much - how long do you think it might take to become rehydrated and what are the signs that you are? I've always passed pale urine so I can't really use that as a gauge.
I'm thinking of trying fludrocortisone at a much lower dose, but reticent as it made me so ill over the summer. In UK so please no suggestions of IV fluids as it is not possible here.
Thanks
 

ryan31337

Senior Member
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Hi @Peajay69,

I've been in a similar position, I was passing about 5L a day at one point. For me it all seemed wrapped up with POTS and associated reactive hypoglycemia issues. Thankfully a very knowledgeable and open-minded Endocrinologist put me on the right track by fixing the hypo issues with significant dietary change, then I added Ivabradine to further calm things down. I had very low aldosterone at this point and I guess you would too given being bedridden + those symptoms.

Happy to share their details (London based) if you need more help - you've probably found most endocrinologists don't understand/appreciate these things unless they're caused by a known disease.

Cheers,
Ryan
 

ryan31337

Senior Member
Messages
664
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1,550
Location
South East, England
And it is possible to get IV fluids in the UK on the NHS. You just need to get in to the very specialist clinics, those focusing on POTS/EDS tend to be the best option, but obviously you need to have indications for those, which you may do (don't count on any GP's before having a clue! Could easily have been missed).