outdamnspot
Senior Member
- Messages
- 924
I was reading the late @Jasper80 's posts and he described an increasing loss of options and kind of 'deadlocked' situation between MCAS, adrenal issues, gut failure etc.
I kind of feel like I'm at the point where the disease has just taken on its own momentum and there's nothing I can do to stop it anymore. Everything I've done over the past 2 years -- throwing herbs, probiotics etc. -- at the situation just temporarily seems to dam the inflammation enough to keep me alive day-to-day, but even that barely works anymore. My body has just been running on adrenaline for so long, and now it feels like there isn't anything sustaining it anymore. I'm not severe to the point where I'm completely disabled -- I'm stuck in the house, but can use my phone (no more TV etc.) and shower/cook for myself. But I have increasingly terrifying episodes of feeling 'empty' (slow pulse, barely breathing properly, mentally empty/blank), and using herbs etc. are increasingly making these reactions worse; it's like a parasympathetic state is somehow very bad for me, but my body can barely produce the adrenaline it needs either.
My body seems to have no sense of rhythm anymore; I don't get naturally tired or desire sleep. I'm just arbitrary awake and then maybe am lucky to get a few hours of nightmare-fueled sleep.
All my test results are normal. And it seems there's nothing I can do to change anything .. having been left completely to self-management. So I give up .
I kind of feel like I'm at the point where the disease has just taken on its own momentum and there's nothing I can do to stop it anymore. Everything I've done over the past 2 years -- throwing herbs, probiotics etc. -- at the situation just temporarily seems to dam the inflammation enough to keep me alive day-to-day, but even that barely works anymore. My body has just been running on adrenaline for so long, and now it feels like there isn't anything sustaining it anymore. I'm not severe to the point where I'm completely disabled -- I'm stuck in the house, but can use my phone (no more TV etc.) and shower/cook for myself. But I have increasingly terrifying episodes of feeling 'empty' (slow pulse, barely breathing properly, mentally empty/blank), and using herbs etc. are increasingly making these reactions worse; it's like a parasympathetic state is somehow very bad for me, but my body can barely produce the adrenaline it needs either.
My body seems to have no sense of rhythm anymore; I don't get naturally tired or desire sleep. I'm just arbitrary awake and then maybe am lucky to get a few hours of nightmare-fueled sleep.
All my test results are normal. And it seems there's nothing I can do to change anything .. having been left completely to self-management. So I give up .