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David Tuller needs our help

Esther12

Senior Member
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Any indication if he intends to do some FOIA requests to get more data? That entire process is pretty ideal for destroying the health of patients :( It'd be great to have someone healthy doing it.
Yes... although I'm not sure how well the gentle British sensibilities of the ICO would suit Tuller's rather forthright style. I'm sure a UK journalist with experience with the FOIA and academia would be able to get a lot of useful information out in ways that patients just don't think of, or no had to do a good job of getting. Anyone know of such a reporter?
 

slysaint

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RogerBlack

Senior Member
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Yes... although I'm not sure how well the gentle British sensibilities of the ICO would suit Tuller's rather forthright style.
Style is largely bypased by 'Following the decision of the tribunal of X that data where the risk of reidentification does not realistically exist is not protected by medical confidentiality', ...

I've noted in the past that the patient consent form uses the form of words 'researchers may contact trialists' - not 'the research team', or 'kings college researchers', raising the issue that a properly funded (probably UK) study from a university, following ethics approval could in principle contact the patient group for further work.
Even very simple additional questionairs could answer interesting things.

SF36 now, for example as well as fairly objective measures like work status.

You don't initially approach the ICO.
You approach the researchers, get a no, appeal to the college, get a no, appeal to the ICO.
 

RogerBlack

Senior Member
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Journalism in all countries, including the UK has undergone a massive hollowing out.
All traditional media has tried to slash costs to the bone, which means that investigational journalism is increasingly under challenge - spending a few months salary on a 'maybe' story simply isn't an option.
 

Snowdrop

Rebel without a biscuit
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That definitely made my day.

He is of course correct -- if he were wrong then they would robustly defend themselves and their trial from such allegations.

Goading them to try is brilliant. I almost wish they would (but am hoping PACE will be roundly trounced long before a trial could manage it).

Kudos DT.:heart: :star::star::star::star::star:
 
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BurnA

Senior Member
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Hi,

David was in Dublin yesterday to meet @Tom Kindlon before heading off to Belfast.

David stopped by my place and we shot a short video - see here :

I also did a longer interview with him but haven't had time to edit it yet, will take me a few weeks to get to it.
David really needs our help on this, because it sounds like his part time work in Berkeley is drying up.

Anyway, give it a watch and anything you can do to help spread the word around, I know David would really appreciate it.
 

BurnA

Senior Member
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Can checks be sent directly to David so more money can go to him without fees and other being taken out? Or may this cause problems?
I can't answer that but I have the impression he really needs to reach his target of $60k.

The convenience of donating online probably makes up for some of the commission, so rather than people delaying I'd say he'd prefer if they just went ahead and donated online.
When you donate online you have the option to pay the fees yourself too.
 

Tom Kindlon

Senior Member
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Hi,

David was in Dublin yesterday to meet @Tom Kindlon before heading off to Belfast.

David stopped by my place and we shot a short video - see here :

I also did a longer interview with him but haven't had time to edit it yet, will take me a few weeks to get to it.
David really needs our help on this, because it sounds like his part time work in Berkeley is drying up.

Anyway, give it a watch and anything you can do to help spread the word around, I know David would really appreciate it.
Well done for doing it.

I've highlighted it in a few places.
Let me know whether you want your name mentioned at all.
 

BurnA

Senior Member
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I am a little concerned that the rate of donations has fallen dramatically in recent days.
Me too.

David mentioned that ME Action were going to do a piece on it or at least help spread the word. Does anyone know if that has happened yet?

It would be nice to think other charities would help promote it too, afterall David's work benefits everyone.
 

ScottTriGuy

Stop the harm. Start the research and treatment.
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It may be helpful if a very short video from a patient pleaded for donations...telling the narrative as concisely as possible to keep the video under Twitter max of 2:20 (iirc).

"please support a real journalist expose fake researchers so patients stop being harmed by physicians"

This drive for donations needs a campaign plan to help achieve its goal...and a small team to drive it forward.