I continued to struggle to live as close as I could to my normal life, for too long when I first came down with this.
I could not compute the seriousness of "rest". For me "rest" was like ...."okay I'll do that......how long do I need to do it for? Half a day? An hour lying on the floor on cushions? A good lie in every morning?...."
I lifted weights (okay just a couple of river rocks) because I didn't want my arms to get weak. I even did push-ups in the morning....until I felt that horrible early morning shakiness ....and a few times my legs refused to literally work! ,,,,,which put a stop to it.
Because of that, I can see by looking in my journal, that I haven't actually got much better in two and a half years, even though I had a number of remissions in 2018 and 2019, and new symptoms arrived this year.
I'm not even severe or moderate/severe. I always think I'm "mild/moderate". But I haven't had many good days this year, except just after Covid, and when running a vitamin B2 experiment this Autumn (both petered out) because I simply don't rest enough!! I have -too many times -tried to soldier on through crashes.