Dr Bell said in an article that when children have ME they will accept that they are not ill and push themselves in a way that adults would not. It is so true.
Thanks for sharing your experiences. Would you mind if I use some of this information (anonymously of course) in my campaign to stop a study piloting the Lightning Process for children with ME? I fear that this is exactly what will happen (i.e. experiences similar to yours), especially as the measure of success is stated as school attendance.
Anyway, I'm in danger of changing this thread into another one, so.....
Tomk, thanks for the interesting discussion. I wouldn't necessarily describe myself as an (ex) "elite" athlete, not olympic level, anyway, but up around the top end in triathlon. I became ill after a few months of very heavy cycling in the winter, when I had an achilles tendon problem so couldn't run. That was 20 years ago.
I still exercise when I can (i.e. when I don't have an obvious infection), at a much lower level. It always makes me feel worse physically, but the positive benefits (mental wellbeing, weight control, improved digestion, better body image - vanity!) are still there for me. It's a case of trying to balance it, which I do badly.
I feel a little guilty telling people here that I can exercise, yet still claim to have ME, I hope everyone is OK with that. Or maybe we don't all have the same disease. The PEM is definitely there for me though.