taniaaust1
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Next weeks daily mail article "Not watching TV cures CFS". I had a dietitian once tell me that.
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It is one of the worst papers there is. Absolutely ruthless in publishing unfounded claims and just making stuff up to sell papers.
@Hip the people in that study got sick with mono at a younger age which I think was in their favor. In addition, they all self reported as having had "mono" none had an EBV test so it is unclear what they truly had as their original trigger. This also seems totally unrelated to the claim that yoga can heal ME.
What I have been reading coming out of the UK is stranger than fiction.
I had mono in about 1970. It was diagnosed by looking at changes in blood cells.@Hip the people in that study got sick with mono at a younger age which I think was in their favor. In addition, they all self reported as having had "mono" none had an EBV test so it is unclear what they truly had as their original trigger. This also seems totally unrelated to the claim that yoga can heal ME.
How would a dietician know that?Next weeks daily mail article "Not watching TV cures CFS". I had a dietitian once tell me that.
Wow, what a strange conspiracy-theory worldview.
Where do you live Hip ?
Because the reality in the UK is that the reporting of ME is very political and very much managed.
I do find this kind of single-minded complacency that is sometimes to be met with in recovered ME patients a real sympathy loser. The subtext of the present example seems to be:I just checked out the article and found it interesting and plausible. Here's the wrap-up at the end--looks like she did a lot more than yoga.
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Slowly, I began to feel stronger and was able to do some of the stretches. But it was the mindfulness yoga brought that affected me more deeply. I began to feel more in tune with my body.
I realised to recover fully I had to rethink my life. I changed my diet, giving up sugar, dairy and wheat, and started reading more, something I’d not done for years. I also left my husband of four years; it wasn’t easy and he’d done nothing wrong, but I wasn’t happy any more.
I loved yoga so much that I signed up for a three-and-a-half year teacher training course with the British Wheel Of Yoga and qualified in 2008. Yoga didn’t just change my life — it gave me my life back.
The subtext of the present example seems to be:
I've run across a number of testimonials by people who feel they've partially or fully recovered from ME/CFS. Sometimes it was spontaneous with them not doing anything but resting, but often they did adjunctive therapies to help them rest and heal.
It seems most long-term pwME/CFS are aware that if you're going to recover from this illness, your best odds are in the beginning phase. ... I often think that if I had done something similar to what this woman did in the beginning of my illness, instead of trying to push through it for years, my outcome might have been much better.
Edward Snowden ... should be ample evidence that the press in the UK and US are totally free and unshackled by the government.
It's paranoid conspiracy theory thinking to suggest that all these ME/CFS recovery stories are deliberately planted in the press to further some political agenda ... Are you really trying to tell me that all is not what it seems, and there is a sinister plot masterminded by some dark forces to put this person on the radio to further some political agenda?
Yes, but not completely without justification, I'd like to think.@Aurator
Are you sure you are not putting words into Sally's mouth?
That's one important reason for my lack of sympathy with these sorts of stories. The suggestion by a few lucky people who, for whatever reason, have recovered from ME that other sufferers can and therefore should take active steps to rid themelves of this illness only serves to lend credence to the old view that has been so pernicious to the welfare of PWME over the years: that the perpetuation of our illness is to some extent a matter of personal choice, and if we really wanted to get better we'd take the necessary steps to do so.I think that people are mistakenly crediting what they actively did (eg Yoga) rather than what they "inactively" did (ie rest) or had little control over by the point they got ill (genetics, immune response and so on)
So people will say "I cured my ME with yoga/carrot juice/chicken soup/meditation/learning to knit/living in a house where all the walls are painted blue" when actually it wouldn't have mattered what they chose - apart from decent rest, and being lucky enough to have practical support and an immune profile that was able to settle down when it wasn't being continually pushed.
Fair enough if yoga is a tool that people use to help them maintain a restful state when they need it and then build up strength when they are able. But that's all it is, and certainly not "and now everyone else should do this too" which generally gets tagged onto these recovery stories as well.