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Hi,
I have been diagnosed as ME/CFS/fibromyalgia.
I managed to create a big reduction in my symptoms. I felt normal for the first time in years. A major difference. Very big reduction in pain/exercises intolerance/cognition problems.
I took a very large dose of a cortisol based nasal spray. 1500mcg of Beconase. The effects lasted about 24 hours and took 2-3 hours to start after spraying.
I saw an endocrinologist, a rheumatologist, and an ENT. They could not find anything wrong with me. They thought it could be a placebo but I repeated it and it worked again. I have also spoken to two GPs and they don't know.
I also tried prednisolone, an injection of depo-medrone and a preventer inhaler. None of these worked.
If I had to describe the feeling, it was like it hit a switch which turned my parasympathetic nervous system on and normalised my ANS. I felt very calm, clear head and body.
Does anyone have any idea what could be happening or who I should go and see?
I emailed a few doctors who do ME research and they haven't replied. My guess is that they think I'm crazy.
WARNING WARNING: When I did this my lungs became incredibly tight. It felt like I was suffocating. I felt fine later but I do not encourage you to try it. I have warned you. I think I had an allergic reaction to the chemicals in the spray. If you suffocate and die it is not my fault.
Kind regards,
Alex
I have been diagnosed as ME/CFS/fibromyalgia.
I managed to create a big reduction in my symptoms. I felt normal for the first time in years. A major difference. Very big reduction in pain/exercises intolerance/cognition problems.
I took a very large dose of a cortisol based nasal spray. 1500mcg of Beconase. The effects lasted about 24 hours and took 2-3 hours to start after spraying.
I saw an endocrinologist, a rheumatologist, and an ENT. They could not find anything wrong with me. They thought it could be a placebo but I repeated it and it worked again. I have also spoken to two GPs and they don't know.
I also tried prednisolone, an injection of depo-medrone and a preventer inhaler. None of these worked.
If I had to describe the feeling, it was like it hit a switch which turned my parasympathetic nervous system on and normalised my ANS. I felt very calm, clear head and body.
Does anyone have any idea what could be happening or who I should go and see?
I emailed a few doctors who do ME research and they haven't replied. My guess is that they think I'm crazy.
WARNING WARNING: When I did this my lungs became incredibly tight. It felt like I was suffocating. I felt fine later but I do not encourage you to try it. I have warned you. I think I had an allergic reaction to the chemicals in the spray. If you suffocate and die it is not my fault.
Kind regards,
Alex