heapsreal
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- australia (brisbane)
@LaurelW @almost both have good points and I'm with you. Being in their own silo mentality is spot on. Plus there's contradiction amongst specialists but as mentioned we know our own bodies best. I'm not ready to cancel all my appointments yet, but I'm close, but I need to have this increased intracranial hypertension looked into deeper.
I think my neuro thinks the cpap and botox are going to fix the headaches. I've done a 2 week trial of cpap before seeing him and I felt worse. I hasn't mentioned what steps to take further down the track. From what I have read weight loss, I can still increase the medication I'm on and worst case scenario is they put a shunt in your head or spine to drain the csf fluid. Today is my weigh in day of the week and I'm down another 2kg.
I am doing some antibiotics and herbal antibiotics which helped a few years ago, as infection can also be implicated in causing increased intracranial hypertension but often ignored by drs especially if you mention cfs post viral issues.
I think my neuro thinks the cpap and botox are going to fix the headaches. I've done a 2 week trial of cpap before seeing him and I felt worse. I hasn't mentioned what steps to take further down the track. From what I have read weight loss, I can still increase the medication I'm on and worst case scenario is they put a shunt in your head or spine to drain the csf fluid. Today is my weigh in day of the week and I'm down another 2kg.
I am doing some antibiotics and herbal antibiotics which helped a few years ago, as infection can also be implicated in causing increased intracranial hypertension but often ignored by drs especially if you mention cfs post viral issues.