heapsreal
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I have been thinking that many non cfsers dont really understand how crap we feel. Most of us havent had a normal day in years. I dont normally mention to my wife or family that im feeling crappy unless its a bad one and i dont normally have to tell them as they can see it. Anyway if we could make a non cfsers experience a week of the way we feel on a average low crappy day for us that we think as normal or good, do u think they would whinge and carry on, run to the doctor etc and think they have cancer or a brain tumor??
I think in general most cfsers are seen as a pack of whingers, but i think after getting over the initial period and sort of excepting we have cfs and cures are rare, we suppress alot of what we are experiencing as know one can help us and i suppose dont want to be negative and try hard to be positive.
I was talking to my brother the other day and he mentioned my cfs etc and mentioned how sometimes he gets a foggy head as well. now i was having a good day for me and to look at probably appeared normal but i said to him i have a headache/brain fog everyday and i do now. He seemed confused and i thought maybe it was because i wasnt mentioning about having a headache or hanging my head low or coming accross as feeling down. I only mentioned it because he brought it up.
I mention all this because yesterday on my scale of feeling crappy, i felt like shit, lol. Now last night medicated myself abit heavier then normal to overcome my headache and get to sleep, today i have woken up feeling better but just that low level crap feeling as soon as i woke up and wondering if today im going to deteriorate to the shit level(sorry for the language but its descriptive term is easiest to describe it). Usually i wake and feel not to bad for an hour or 2, not at the crap level yet.
Anyway, i have dribbled enough, does anyone feel or understand what im dribbling on about.
cheers!!!
I think in general most cfsers are seen as a pack of whingers, but i think after getting over the initial period and sort of excepting we have cfs and cures are rare, we suppress alot of what we are experiencing as know one can help us and i suppose dont want to be negative and try hard to be positive.
I was talking to my brother the other day and he mentioned my cfs etc and mentioned how sometimes he gets a foggy head as well. now i was having a good day for me and to look at probably appeared normal but i said to him i have a headache/brain fog everyday and i do now. He seemed confused and i thought maybe it was because i wasnt mentioning about having a headache or hanging my head low or coming accross as feeling down. I only mentioned it because he brought it up.
I mention all this because yesterday on my scale of feeling crappy, i felt like shit, lol. Now last night medicated myself abit heavier then normal to overcome my headache and get to sleep, today i have woken up feeling better but just that low level crap feeling as soon as i woke up and wondering if today im going to deteriorate to the shit level(sorry for the language but its descriptive term is easiest to describe it). Usually i wake and feel not to bad for an hour or 2, not at the crap level yet.
Anyway, i have dribbled enough, does anyone feel or understand what im dribbling on about.
cheers!!!