Could brain inflammation affect the eyes ?

[HABS93]

Just a question I'm having trouble solving . I'm still waiting back for my hair mineral test and interested in a OAT but I think most of my symptom's are linked to brain inflammation

 

[Pyrrhus]

Neuroinflammation often affects the nerves that control the eyes.

This affects the vision without directly affecting the eyes.

Hope this helps.

 

[HABS93]

Neuroinflammation often affects the nerves that control the eyes.

This affects the vision without directly affecting the eyes.

Hope this helps.

Very helpful. So can. This he the reason it feels like there a cloud over my eyes ? My vision is 20/20 but it's fuzzy . Happened when the symptom's arose.

 

[mattie]

IIH can cause blurry vision and damage to the optical nerves (papilledema). It is also thought to be the cause of ME in a subset of patients. You can have papilledema checked by an ophthalmologist.

https://www.webmd.com/eye-health/papilledema-optic-disc-swelling

https://me-pedia.org/wiki/Intracranial_hypertension

 

[PatJ]

This he the reason it feels like there a cloud over my eyes ? My vision is 20/20 but it's fuzzy . Happened when the symptom's arose.

Is it permanent or intermittent? I get that cloud/veil over my vision sometimes when my blood sugar is too low. It can also be a sign of low magnesium or potassium. People with ME/CFS often need to supplement magnesium or potassium.

 

[Avena]

Very helpful. So can. This he the reason it feels like there a cloud over my eyes ? My vision is 20/20 but it's fuzzy . Happened when the symptom's arose.

Have you considered dry eyes? Always happens with increased symptoms for me...

Dry eyes could really blur the vision. Over the counter lubricant eye drops should help in that case. If you have had dry eyes for a while, it may take a few days with drops before it helps (dry enough eyes could affect the surface).

 

[HABS93]

Is it permanent or intermittent? I get that cloud/veil over my vision sometimes when my blood sugar is too low. It can also be a sign of low magnesium or potassium. People with ME/CFS often need to supplement magnesium or potassium.

Been permanent for a year now. Had a blood test done and my blood sugar was 4.9mol . My potassium and magnesium levels weren't low. Although I did supplement magnesium malate but nothing changed.

 

[HABS93]

Have you considered dry eyes? Always happens with increased symptoms for me...

Dry eyes could really blur the vision. Over the counter lubricant eye drops should help in that case. If you have had dry eyes for a while, it may take a few days with drops before it helps (dry enough eyes could affect the surface).

Dry eyes my eyes never felt dry but maybe I just didn't notice that? You mean like visine ?

 

[Avena]

Dry eyes my eyes never felt dry but maybe I just didn't notice that? You mean like visine ?

Sorry, I’m not familiar with US brands. But checked Walgreens, and one I recognize and can recommend is Systane Ultra. I prefer gels that stays on the eye longer than drops, but maybe more of an acquired taste.

 

[Rufous McKinney]

my vision is profoundly blurry and my eyes pour water. They ache alot and straining to see thru the blur is quite debilitating. Seeing at night, or looking downward, is quite difficult. They also feel squeezed. So since this whole area is squeezed , I am convinced my brain is also squeezed and thats likely making most of this happen.

I've yet to get any help with this from my fabulous insurance. The eye doctor tells me my eyes are fine. They clearly aren't.

This symptom is also anxiety exacerbated.

Does anyone else get anxious when one's heart goes off beating at 180 bpm?

 

[Celandine]

I have dry eyes but do not have ME. The Systane Ultra drops mentioned above work really well for me. My daughter has ME and POTS and often, especially when suffering from PEM or in a POTS flare, complains of terrible blurred vision. She tried my drops for over a week and they didn't help her at all. So, it's something else in her case. Could be intracranial pressure.

 

[nyanko_the_sane]

Some of us have bouts of nystagmus, which is no fun.
https://me-pedia.org/wiki/Visual_dysfunction

 

[maggie3]

My eyes get really blurry and dry when my symptoms flare up. Its so annoying. My flares seem atypical and involve a swelling of my entire body and super dry skin, eyes, and mouth.

 

[Celandine]

Have you been tested for Sjogren's @maggie3 ?

 

[maggie3]

Have you been tested for Sjogren's @maggie3 ?

@Celandine no I have not. I honestly don't think I truly have me/cfs but have not really gotten any other answers. Although just made an apt with a me/cfs specialist and requested an apt with Mayo Clinic and am hoping they will be able to run the gamut of obscure tests to rule out all these strange diseases or get an actual diagnosis so I can feel alive again.

 

[Celandine]

I really hope you get some answers, @maggie3 . I just thought of Sjogren's because of all the dryness symptoms you mentioned. Worth mentioning when you go for an appointment. Unfortunately, I think blood tests don't always pick it up and the gold standard test for Sjogren's is a lip biopsy. Not exactly simple! Good luck with your appointments.

 

[maggie3]

Thanks so much @Celandine. I am making a list of things I want to discuss during these apts so will certainly add sjogrens to the list. It seems like nothing is simple when it comes to these complex diseases.

 

[Aubry]

After 5 years of having ME diagnosis I now have Primary Sjogren diagnosis. I have positive Lip Biopsy for Sjogren (focus score = 2), positive Anti-SSA in blood and sometimes ANA (changes in time).

 

[Aubry]

I also have positive Small Fiber Neuropathy test which fits the Primary Sjogren Diagnosis. So now I don't know if I suffer from ME/CFS or only Sjogren. It doesn't make it easier unfortunately since there are shitty treatments for Sjogren that mostly don't work ...

 

[Marylib]

@Aubry Pyridostigmine (mestinon) has really helped my dry eyes. I have never been tested for small fiber neuropathy.