Thank you Andrew! This is amazing. Cort, why have you been keeping this under your hat? Well, you probably thought we all knew about it and seriously I'm sure I read it before but I see it with new eyes now.
Some of the comments that jumped out at me:
"You just keep showing these guys compelling data. We have a piece of data that would just knock your socks off but I’m not showing it. “ Dr. Judy Mikovits
“The average chronic fatigue syndrome patient on the day they were tested had between 30-50 viruses; the average control had 3 or 4” Dr. Daniel Peterson, 2008 Swedish Conference
Okay-- I keep saying that I feel like I catch one new flu on top of another.
Not only that but they found that these patients had a distinctive viral signature; in fact it’s distinctive enough that the WPI believes it’s a diagnostic for them i.e. it’s a biomarker for this group. It’s essentially a series of tests that can (and is) being put on a chip that physicians can easily run to determine if the fatigued patient before them fits this profile. What is ‘it’ identifying? It’s identifying the viral subset in ME/CFS. If the WPI is successful at doing this they’ll cut a significant group of patients free from the chronic fatigue syndrome label.
Yahoo! And it won't be soon enough.. I tell ya.
“The most common immunological dysfunction found in these around the world is low natural killer cell function….and that’s been true of every study that’s been done around the world….I think it’s a real key to what’s happening in these patients’ Dr. Daniel Peterson, 2008 Swedish Conference
“We did a little study of physicians in Reno and found that only three percent knew what an NK cell or a dendritic cell was” Dr. Dan Peterson, 2008 Swedish Conference
No wonder the bad doctors keep saying, "It's all in your head! It's all in your head!"
And the ignorant doctors also tell us, "Don't go reading about your illness on the Web!"
If physicians are going to get it about this group of patients they’re going to need to get some basic science education.
The question is what does your pathology report show? Do you have an NK cell defect? Do you have an epigenetic profile that suggests that heavy metals are your problem because you’ve silenced your genes through hyper-methylation?
Hey, there's Rich's methylation and the epigenetic profile people here are discussing on another thread.
♪♫"I want a new drug. One that won't make me sick. One that won't make me talk too much or make me feel thick, thick, thick."♫♪♫ ~ Huey Lewis
“I have a patient who had mesial-temporal sclerosis….he was in a nursing home because he couldn’t care for himself, he couldn’t write his name, he couldn’t talk. His spinal fluid was positive for HHV-6A. I treated him for a year with Vistide and now he’s working as a carpenter.“
In a recent interview Annette Whittemore indicated that the WPI fully expects that their intense examinations of patients will uncover other available drugs that no one had dreamed would be effective in ME/CFS. The WPI feels it has a good grasp on the immune abnormalities effecting these and has started dipping it’s toe’s in the drug manufacturing arena to find appropriate drugs.
Dr. Mikovit’s noted, however, that these intense examinations have already provided some real surprises. They’ve uncovered, for instance, that some patients who do not have cancer nevertheless display immune results that look very much like cancer patients. For them immune regulating anti-cancer drugs are appropriate treatments - something no one would have guessed two years ago.
As was noted earlier this wasn’t just any set of ME/CFS patients. This was the Incline Village cohort; these fluey, lymph node enlarged, viral patients with these odd, and possibly quite dangerous, T-clonal cell rearrangements –which means, of course, that these results will not apply to other types of patients.