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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Contact info needed for ME orgs


Senior Member
NYC (& RI)
I am working on advocacy against the IoM contract. I need contact information for as many ME orgs as possible to spread the word. Does anyone have such a list? I remember that people were contacting tons of ME orgs around the world during at least one of the voting contests. (I have already messaged Dolphin and am waiting to hear back).

Also, since I think the IoM issue is the most important advocacy issue I have ever seen, I strongly urge each of you to get involved over at the advocacy section of Phoenix Rising. Thanks!