BEG
Senior Member
- Messages
- 1,032
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- Southeast US
Thanks for the suggestion. I'll give it a shot and let you know how I make out.
I can't wait to hear from you !! LOL
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Thanks for the suggestion. I'll give it a shot and let you know how I make out.
I can't wait to hear from you !! LOL
Do you think I'll look purrrdy?
Do you think I'll look purrrdy?
Just be careful, ChrisIt might not be purrdy.......
I'm a little insulted that you don't think I can pull it off. I have a much better figure than that guy. I will def. take pictures for you guys...
In all seriousness though, I just bought the g-suit from flighthelmet.com - I'll let you know how I do.
[...]Instead when I stand at times I now get severe pelvic pain, low just above the pubic bone or on the flanks. A year ago I started getting a new, intense (burning, nerve type) of pain and there is also a pressure involved. At first I thought it involved nerve entrapment because it's at night and I didn't even like to touch my skin in that area. I find it worse during my cycle when estrogen is the highest, and estrogen makes everything swell.
I'm able to touch my skin now, but I'm wondering if it could be pelvic congestion syndrome, where the veins of the ovaries (or pelvis??) fill will blood (like vericous veins in the legs). With PCS it is suppose to be worse at night because of being upright during the day and the pressure that would put on the veins.
I have yet to read about pooling in the pelvis with OI, only mention of abdomen and legs. But, I think it may be all intertwined, and if I have blood pooling in that area that would complicate things and I have been thinking of wearing an abdominal binder/corset because of it. If I do pelvic tilts or apply pressure (hold a pillow tightly against my pelvis) at that time it does seem to help. Now I need to see when OI symptoms happen in regards to my cycle too.
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I am thinking of getting a compression pantyhose for my OI. Do they also help abdomen blood pooling?
I found this website http://www.foryourlegs.com/search.php?mode=search, there is quite some price variation and I dont know what one is best, i was thinking of getting the yuzo basic with a compression of 30-40. However I have very long legs so not sure if ill fit them. Any advice is appreciated! Thanks )
bump
I am thinking of getting a compression pantyhose for my OI. Do they also help abdomen blood pooling?
I found this website http://www.foryourlegs.com/search.php?mode=search, there is quite some price variation and I dont know what one is best, i was thinking of getting the yuzo basic with a compression of 30-40. However I have very long legs so not sure if ill fit them. Any advice is appreciated! Thanks )