I'm convinced you are going to definitely figure something BIG out, Valentijn! You are so clever and always searching for common threads (or the least common!) to see potential answers.
I wonder if we can all share not only what mutations we have for specific SNPs you are closely looking at, but also let you know more clearly what issues we're having. Maybe those of us with TT (as I have) experience CFS (and Lyme) differently than those who are CC or CT. My symptoms are far worse than my daughters when it comes to pain in the body and sensitivities to things.
You're definitely onto something here and I hope more people will share what their rare mutations are with you!!
Thanks for all you and everyone else here does. I hope to one day be feeling better and be an active helper/supporter, too.
XOXOXO