Children and family members

Messages
51
Hi Everyone
I have a huge concern.
My Daughter is in her mid 30's
And she is starting to slowly develope my exact symptions of Cfs/me or long covid.
She has had different strains of covid twice, and different covid vaccines.
I have been having every test I can and i have been seeing every Dr. I can
I have not cared about the cost.
I want to find out what is wrong with me to help her , more than myself !
Iam in over $650k in medical bills so its in the thier best interest to keep me going ! LOL

Does anyone else have a family member, That is showing any Cfs symptions?
Thanks for any input or questions you may have.
 

Rufous McKinney

Senior Member
Messages
14,631
I"m so sorry you are having to deal with worry about your daughter. You could search for older threads that might exist on this topic. Genetics, Family History.

@southwestforests father also deals with ME, so maybe he might respond as I tagged him here.
 

southwestforests

Senior Member
Messages
1,441
Location
Missouri
Dad is a US Navy veteran was their first medical retirement with ME/CFS and Fibromyalgia, and several other things.
Took several years in the early 1980s for military doctors in Virginia to sort out what was happening to him.

I have an attitude that the military is using him as a long term research subject since at this time his medical records are literally something like 3 feet, 1 meter, thick.
He's gotten far, Far, FAR, better ME/CFS care than I a total civilian have.
 
Messages
51
I"m so sorry you are having to deal with worry about your daughter. You could search for older threads that might exist on this topic. Genetics, Family History.

@southwestforests father also deals with ME, so maybe he might respond as I tagged him here.
Thank you for Caring.
I would do anything for my family!
I have helped a lot of people in my time and I still do when I am able.
Thanks
 
Messages
51
You Rang?
Hi
I asked the below question and you were higly reccomended!
Have you by chance ran into anyone
That thier child or family members are starting to show some symptons like the have.
Hi Everyone
I have a huge concern.
My Daughter is in her mid 30's
And she is starting to slowly develope my exact symptions of Cfs/me or long covid.
She has had different strains of covid twice, and different covid vaccines.
I have been having every test I can and i have been seeing every Dr. I can
I have not cared about the cost.
I want to find out what is wrong with me to help her , more than myself !
Iam in over $650k in medical bills so its in the thier best interest to keep me going ! LOL

Does anyone else have a family member, That is showing any Cfs symptions?
Thanks for any input or questions you may have.
 

southwestforests

Senior Member
Messages
1,441
Location
Missouri
I asked the below question and you were higly reccomended!
Ah, I'm flattered.
The advertising and the actual product may be different ...

Have you by chance ran into anyone
That thier child or family members are starting to show some symptons like the have.
Technically, no, I haven't run in to anyone that their child has ...
However ...
I am the child who did ...

Dad had symptoms hit sometime in early 1980s, I forget if it was 81, 82, 83, but sometime then and the symptoms hit hard and suddenly.
One morning he was out doing his standard jog before going in to the ship, and partway along he got hit with too much fatigue to even take another step.
Like flipping that proverbial light switch Dad went straight from healthy and athletic military guy to invalid.
Then began a multiple year process of military doctors from all around nothern Virginia trying to figure out what was happening to this guy.
To this day it looks like they are still doing research on him.

December 2005 was when ME/CFS symptoms hit me.
Got fatigued then very fatigued during Christmas shopping season at store where I worked.
Cut back to part time.
Then one day in March 2006 while I was ringing up a customer on the computer cash register I had been one of the 2 people who did its programming when we were assembling the store to open it. all of a sudden I had no idea, zero idea, what this machine did, what I was supposed to make it do, and what all the pretty colors buttons were for.
Thought I was having a stroke.

We got me to the nearby hospital and I don't remember if it was that day or a following day a doctor said to me that it wasn't a stroke, and, "Have you ever heard of a couple things called Chronic fatigue syndrome and fibromyalgia?"
Still very much remember my response, "Ahhh S#!^, let me tell ya about my Dad, he was Navy's first medical retirement with those ..."

🤔Hmm, Dad and I developed the same diseases at about the same ages,
what's up with that?
And when I was diagnosed it had been 19 years since I'd lived in the same house he did.
Genetic component?????????

Now, given I was a poor civilian, and also had on my medical record a 1981 diagnosis of bipolar, which in 2009 finally got corrected to autism, I got rather sucky medical care and ME/CFS and fibro were pretty much ignored, except for one guy at the nearby teaching hospital it was just blown off as bipolar symptoms.
And largely has been to this day.

My old grey doctor retired and the 6ft 3in studly young guy pretty much fresh out of medical school who replaced him replied that he'd never heard of ME/CFS when I asked him about it, what, almost a year ago now.

To this day I think Black Lives Matter is right about one thing, the United States of America's healthcare medical industrial complex 100% deserves to be burned to the ground. ALL OF IT.
And last year would not be soon enough.
 
Last edited:
Messages
51
Ah, I'm flattered.
The advertising and the actual product may be different ...


Technically, no, I haven't run in to anyone that their child has ...
However ...
I am the child who did ...

Dad had symptoms hit sometime in early 1980s, I forget if it was 81, 82, 83, but sometime then and the symptoms hit hard and suddenly.
One morning he was out doing his standard jog before going in to the ship, and partway along he got hit with too much fatigue to even take another step.
Like flipping that proverbial light switch Dad went straight from healthy and athletic military guy to invalid.
Then began a multiple year process of military doctors from all around nothern Virginia trying to figure out what was happening to this guy.
To this day it looks like they are still doing research on him.

December 2005 was when ME/CFS symptoms hit me.
Got fatigued then very fatigued during Christmas shopping season at store where I worked.
Cut back to part time.
Then one day in March 2006 while I was ringing up a customer on the computer cash register I had been one of the 2 people who did its programming when we were assembling the store to open it. all of a sudden I had no idea, zero idea, what this machine did, what I was supposed to make it do, and what all the pretty colors buttons were for.
Thought I was having a stroke.

We got me to the nearby hospital and I don't remember if it was that day or a following day a doctor said to me that it wasn't a stroke, and, "Have you ever heard of a couple things called Chronic fatigue syndrome and fibromyalgia?"
Still very much remember my response, "Ahhh S#!^, let me tell ya about my Dad, he was Navy's first medical retirement with those ..."

🤔Hmm, Dad and I developed the same diseases at about the same ages,
what's up with that?
And when I was diagnosed it had been 19 years since I'd lived in the same house he did.
Genetic component?????????

Now, given I was a poor civilian, and also had on my medical record a 1981 diagnosis of bipolar, which in 2009 finally got corrected to autism, I got rather sucky medical care and ME/CFS and fibro were pretty much ignored, except for one guy at the nearby teaching hospital it was just blown off as bipolar symptoms.
And largely has been to this day.

My old grey doctor retired and the 6ft 3in studly young guy pretty much fresh out of medical school who replaced him replied that he'd never heard of ME/CFS when I asked him about it, what, almost a year ago now.

To this day I think Black Lives Matter is right about one thing, the United States of America's healthcare medical industrial complex 100% deserves to be burned to the ground. ALL OF IT.
And last year would not be soon enough.
Hi
I am sorry ya'll had to deal with Everyones health issues.

One question: Have yo been tested for heavy metals? Mainly lead?

Please understand my grammer is terrible! I cant help it at this time.
My Cfs started around 2021 to mid 2022.
My Daughter started showing signs last year , mid 30's .
Symptons , lack of energy , now transforming to sleeping all the time and fatigue.
She has been to some doctors, I actually switched to her Pcp so the Dr, could study both of us , and we both share the same Rheumatologist.
And he has put us on different biologics to see if one helps either of us then try it on the other.
She is about to start on her seventh one.
They are working on getting me approved for my sixth.
So we are in limbo right now.
Thanks for your life story!
It does show that it is possible that a Parent and child can have the same thing.
 
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