Hi all,
Having gotten back to 70-80% functioning during the latter half of '16 and the first half of '17, I crashed hard in July. My overwhelming fatigue returned for a week and then I became ill. The NHS in the UK tested me, and I was positive for infectious mononucleosis (so most probably EBV?). My ESR and C-reactive protein were high, and my iron was low. At the time I felt too ill to do further testing to be sure if I had "EBV" but its something I want to do now. My fatigue has not improved much if at all since July - so I have decided once and for all to devote all I have to getting better.
I have seen Dr Bansal and Dr Weir in London. Dr Bansal put me on acyclovir 3 x 400mg a day, and Dr Weir did not have much advice besides continuing this treatment. I tried acyclovir for 2 months but it raised my liver enzymes, and I am waiting to see Dr Bansal to see if I should continue with it.
At this point Im seeking advice on whether to see Dr Chia or KDM in Belgium? Obviously KDM would be much easier as its a train ride, whereas with Dr Chia I would have to fly to California to see him face to face (I would be willing to do this though if he was my best shot at recovery).
In terms of clinical evidence for docs to work with I dont have too many abnormalities:
weak smooth muscle antibody
Low mannose binding lectin (21)
Borderline low Vitamin D
Borderline Serum Copper
Borderline Ceruloplasmin
Borderline Low salivary DHEA
low free testosterone (normal total testosterone)
High albumin
High HDL
I take:
150 mg sertraline
50 mg quetiapine
100mg coq10
50mg dhea
2g l-carnitine fumarate
2g pantothenic acid
1g vitamin C
Please if you have any advice re docs or treatment let me know `very interested in ARVs or a stronger AV like valtrex instead of acyclovir. Also if anyone knows of anywhere in the UK that does good viral testing please let me know. Thanks so much
Having gotten back to 70-80% functioning during the latter half of '16 and the first half of '17, I crashed hard in July. My overwhelming fatigue returned for a week and then I became ill. The NHS in the UK tested me, and I was positive for infectious mononucleosis (so most probably EBV?). My ESR and C-reactive protein were high, and my iron was low. At the time I felt too ill to do further testing to be sure if I had "EBV" but its something I want to do now. My fatigue has not improved much if at all since July - so I have decided once and for all to devote all I have to getting better.
I have seen Dr Bansal and Dr Weir in London. Dr Bansal put me on acyclovir 3 x 400mg a day, and Dr Weir did not have much advice besides continuing this treatment. I tried acyclovir for 2 months but it raised my liver enzymes, and I am waiting to see Dr Bansal to see if I should continue with it.
At this point Im seeking advice on whether to see Dr Chia or KDM in Belgium? Obviously KDM would be much easier as its a train ride, whereas with Dr Chia I would have to fly to California to see him face to face (I would be willing to do this though if he was my best shot at recovery).
In terms of clinical evidence for docs to work with I dont have too many abnormalities:
weak smooth muscle antibody
Low mannose binding lectin (21)
Borderline low Vitamin D
Borderline Serum Copper
Borderline Ceruloplasmin
Borderline Low salivary DHEA
low free testosterone (normal total testosterone)
High albumin
High HDL
I take:
150 mg sertraline
50 mg quetiapine
100mg coq10
50mg dhea
2g l-carnitine fumarate
2g pantothenic acid
1g vitamin C
Please if you have any advice re docs or treatment let me know `very interested in ARVs or a stronger AV like valtrex instead of acyclovir. Also if anyone knows of anywhere in the UK that does good viral testing please let me know. Thanks so much