I'm not suggesting anyone stop trying things but I am suggesting that we see clearly the reality that this is not the summer flu we're talking about. We want researchers to take this seriously and find a solution/treatment for millions of sufferers some of whom are desperately ill.
I'm not sure what temporary solutions have to do with how seriously researchers take our illness.
I know that some people have tried a lot of different treatments and have been unable to find anything helpful for them. But, as I pointed out someplace else, it's interesting how we take evidence of each prescription drug on its own merits, but with over-the-counter, herbal, vitamins or what-have-you, it's always, "I tried chamomile tea one time
and licorice root a bunch of times. I even tried withania. Nothing works." Each prescription med is treated as its own thing, but alternative medicine is treated as one, big thing: if you try 'it' from a couple of different angles and it doesn't completely cure you, it must not be worthwhile.
What ends up over the counter and what ends up a prescription drug is often totally unrelated to the chemical's strength or efficacy. Then we have the plethora of drugs that are derived from natural sources... and yes, if you take the herb instead of the purified substance, you still get an effect, depending on the herb and the preparation.
I probably will make a blog post at some point in order to discuss some of this... because I often end up saying the same things.
Early on I had a habit of conflating symptom with illness. If I could do something to alleviate a symptom I equated that with making progress in fighting back the illness. I now know this is not the case.
I'm really not sure what to make of this. I'm trying to manage my symptoms, not trying to cure myself of ME/CFS with chai tea... or any other OTC supplement! If something helps me manage my symptoms, I'm happy to use it. I'm happier, even, when it's something I can purchase myself without the go-ahead from a physician to try and see if it's helpful.
Since we don't have a cure, symptom management is the ONLY important thing to me right now. Moreover, even prescription meds may only be able to offer us symptom management help as well.
The idea that nothing that comes from a food or a plant can be helpful is just plain old bias. A chemical is a chemical, and unless you believe in energetic perturbations, a chemical will have the same effect on your body no matter how it is derived / where it is from.
-J