This was a very good two-day session overall, which I recommend listening to in whole or part, when we get a link.
Have watched CFSAC meetings since inception & agree with
@Sing it's worth a listen when the link is posted.
I thought especially promising:
1. Work of the
Pediatric Education Workgroup advising pediatric patients, their families, and educators about the impact of ME/CFS; providing management guidelines matched to degree of disability; endorsed by CDC and Dept of Education; and available on-line. I'd give it a grade of A+.
2. Courtney Miller's Simmaron Research Update and plans to study treatments: ampligen, antivirals, amino acids, IVIG, IV saline that address immune modulation/antibody replacement, viral load, raw materials, blood volume, and other factors, endpoints being NK function and VO2 max improvement. Looking forward to hearing more about this..
3. Prof. Unutmaz's focus on the immune system, microbiome, and metabolism; collaboration with the Lipkin and Hanson Collaborative Research Centers; and use of US and UK biobank samples for studies.
4. The "existence" of a
Clinical Trials and Treatment Workgroup.
5. Including the
Department of Defense on the Committee.
6. The excellent "Public Comments," as always.