Down With the Sickness
Oh my! No wonder she understands. It's heartbreaking to hear of anyone that young getting CFS!
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Joy posted this on another thread and I thought it deserved a thread of its own.
What we do know, what this study shows us first and foremost, most importantly, is that there is a biological basis for Chronic Fatigue Syndrome. So we don't want to hear any more about " oh they have depression" or "It's all in their heads." That arguement is over. This is yet another piece of evidence that it is biological. It's not the only piece of evidence, but it's the most alarming and attention getting, or what Dr Susan Vernon of the Chronic Fatigue and Immune Deficiency Syndrome calls "a game changer."
I also thought she did a great job conveying the facts. She definitely has great media communicating skills.
The CAA website says the CAA has nominated Dr. Moore to be a member of the next CFSAC committee (along with Dr. Mikovits, Dr. Peterson, and others). According to the CAA's letter to DHHS with brief bios of the nominees, Dr. Moore's son was diagnosed with CFS 4 years ago (no mention of how he's doing today) - so she has a personal connection to the disease.
Wow! There is hope!!
I can't believe I am seeing this on mainstream media. She understands our symptoms.
I don't know if she has the many possible causes, but she was definitely impressive.
She also looked believable. We need to get her on the Oprah show where millions watch, and yes, Finch, on the panel.
My DVR normally records GMA every morning. For some reason it didn't this morning. Grrr.
Anyway, I too thought she did a great job. If there's one thing I would have liked to see her mention is that there are varying degrees of ME/CFS, and that some people can become homebound and bedbound for years, not just months. But I think she could be a great spokesperson for us. She certainly comes across as very credible.
That was a good interview.
The one thing that intrigued me was she said, one day there will be a Type I and a Type II. I wonder what she meant by that, other than the obvious - child onset and adult onset. Like what would that mean in terms of what is going on the body?
For example, there are two different metabolic processes going on which cause Type I and II diabetes, but they are both diabetes.
That was certainly the best interview regarding CFS that I guess one could expect on a national morning news show (that are of course sponsored big time by drug ads).
My only complaints echo Wayne's: I was sorry that she didn't stress how serious this can become (no talk of some patients becoming bedridden for years, for example)...and that there was no mention of the possibility of mold or other environmental/heavy metal/toxic chemical issues that may play a large role in developing CFS. Just viral...
It's a great start however. A six-minute interview about CFS on national tv...that's amazing in itself.
Thanks for posting this Cort!
It's amazing that CFS got coverage on a show like GMA, and it was a good interview overall. She was clear, credible, presented well, and was accurate in what she said; I bet she would make a great advocate.
I know we should be grateful for any kind of mainstream media coverage (and she only had 5 minutes!), but maybe because I've been feeling wistful about an imminent separation from my job in a career that I worked so hard to build and loved (my one year leave of absence expires soon), I came away with the impression that her presentation was a bit sugar-coated for the mainstream audience. If I had watched this a year ago before I got sick, I wouldn't have thought this was a serious disease.
While she described the symptoms very competently (and if you were listening especially carefully you could work out that, for example, if a game of soccer caused you a 3 day crash you were probably too sick to maintain a full time job), I thought her statements described the more mildly affected and didn't get across, for example, the high rates of work disability among those who are more seriously affected. How I WISH I had an important business meeting I had to go to tomorrow!
Sorry--just had to get that off my chest! Thanks for posting the interview.