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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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CFS TODAY SHOW segment--BLOG AND FB PAGE to post comments on


work in progress
N. California
Heather Hummel is the daughter of Valerie Ramsay, who was the CFS patient featured on the Today Show with Nancy Snyderman. Heather is very nice, very empathetic to our plight, and very open to comments and stories about CFS and our struggles with it.

She is VERY NEW to the scene, and does not know much about the history, politics, or the severity of the illness. So this is an opportunity to educate her and all the many people who will reading her blog. Please leave comments on her blog and her FB page. (and please try to be nice... she is a potential ally) Thanks.



Here is the TODAY SHOW segment


Senior Member
If you post on her blog, a weird thing happens. It asks you for your name, then there is a box for a comment. You have to put something in this box, but when you post it, it disappears. Then you get another similar box that asks for your name and comment (along with some anti-spammer jumbled letter code to put in).

Soooo....just put something fake in the first time to get it to the second box. Then put your real message in. Or make sure you copy what you put in the first time, so when it disappears you can paste it in the second box.