knackers323
Senior Member
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- 1,625
This is probably old news to many but thought I would share it for those who are not aware
https://www.medicalnewstoday.com/articles/amp/322414
https://www.medicalnewstoday.com/articles/amp/322414
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Corresponding author Dr. W. Ian Lipkin, director of CII and the National Institutes of Health (NIH) Center for Solutions for ME/CFS, also weighs in on the findings, saying, "We're closing in on understanding how this disease works."
"We're getting close to the point where we can develop animal models that will allow us to test various hypotheses, as well as potential therapies. For instance, some patients might benefit from probiotics to retune their gastrointestinal microflora or drugs that activate certain neurotransmitter systems."
Dr. W. Ian Lipkin
Metabolite testing also saved me, and I have mentioned this to many doctors.
Which metabolite tests did you do? I've only done organic acid test (urine), amino acids and intermediaries (urine and blood), some catecholamine metabolic products (neurobiogenic amines). And which companies did you use /are they availalbe direct to consumer?
Would also love to hear more on how it saved you. i've found a few things that have been helpful - magesium deficiency, taurine deficience, and i've been addressing them, but others jsut pointing to what i already suspected and/or just don't know what to do about them and/or don't know their causes (increased dopamine, decreased serotonin, very depleted glutathione, call for more glutahione, increased oxalates, possible mao trouble)