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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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How can they study Incline Village outbreak, name that illness CFS, then, when studying it, say the people in the study, including some from the Incline Village outbreak, have something else besides CFS. They defined those people in Incline Village as having CFS. But now they say they don't, they and the others in the WPI have a have a neurological condition?
The whole CDC CFS program started with Incline Village. If those folks, and the others in WPI study have something else besides CFS, then why isn't CDC looking into that? What is it called? If it is Myalgic Encephalomyelitis, then how is CDC doing on studying that? When was the last study published by the CDC on ME?
Tina
Well, the paper did get published the Thursday before the 4th of July extended weekend after being on hold for three weeks. People are kind of distracted. Government offices and most businesses will be closed on Monday. Hmmm . . .
Good points. I think Mikovits' theory also rings true for gradual onset. The way she described is that the immune system tries to keep the virus down. We know there are antibodies. She said that if the triggers keep up, with each flood of the virus, the immune system loses ground in the battle, until there is a tipping point. So I can see where the tipping point can be a sudden onset of symptoms or, as has been suggested, maybe multiple little squirmishes with other infections or stress or progesterone spikes, so that with each one, more damage is done. Immune system attacks again, but then another trigger, and so it gets worse gradually.
Tina
How can they study Incline Village outbreak, name that illness CFS, then, when studying it, say the people in the study, including some from the Incline Village outbreak, have something else besides CFS. They defined those people in Incline Village as having CFS. But now they say they don't, they and the others in the WPI have a neurological condition?
Tina