That does not make it ethical for ME and CFS activists to employ the same tactics.
This arguement is typical of most groups discussing possible protests, and, unfortunately, it'll probably never reach a concensus...
In my experience, most groups are made up of publicity-shy moderates, with a few attention seeking 'extremists' thrown in... Some people are good at sustained, intelligent badgering of officialdom, some people are good at doing spectactular things that get attention, and most people are good at signing petitions and making up the numbers... all avenues of protest are important. But, quite often, the outrageous stunts really are the ones that catch the attention of the media, and therefore, the public.
Do the publicity stunts - just make sure you've thought through the probable reactions and written up some red hot, intelligent, press releases to counter anything that's chucked at your way.
But don't expect too much obvious support from the 'community' - most people don't seem to want to look silly/ odd/ eccentric/ angry, even if their life depends on it!