Here is the full paragraph from the CDC on definitions:
If I were at the CFIDS Association of America, I'd consider this a frontal assault on the organization.
So according to the CDC, you are either CFS or ME but they know nothing of ME.
The CAA and the IACFS/ME have to come forward on this issue.
Agreed. If the CAA and IACFS/ME don't address this, how are we, as patients, supposed to fight it?
It's still not clear to me how the CDC expects me (or my doctor) to distinguish between these two supposedly distinct conditions. To which "neurological and muscular signs" exactly are they referring?
When I reviewed the case definition linked above, I noticed this. which I hadn't noticed before:
[my bolding]CFS patients may report many other symptoms that are not part of the syndrome, such as allergies or sinus problems; numbness or tingling; feeling in a fog; dizziness and balance problems; sensitivity to substances and stimuli; and night sweats (Nisenbaum et al., 2004). Health care professionals should investigate the possibility of underlying medical and psychiatric disorders in those patients who report numerous symptoms not strictly associated with CFS and should remain alert to the development of new symptoms that require further evaluation
So if we have CFS we have a psychiatric disorder, but if we report "numerous symptoms not strictly related to CFS", say oh, perhaps "neurological and muscular signs", then our doctors should investigate the possibility of psychiatric disorders? Sounds like a catch-22 to me.