CDC PCOCA conference call on 2/23/2015 with Dr. Montoya and Dr. Unger

[SDSue]

I'm on. Anyone else?

 

[Countrygirl]

I am being dense here, but can someone give me the link please.....or is it not possible for people in the UK to listen?

Edited to say I think this is probably not available on the internet but only by phone.

 

[Ritto]

I am being dense here, but can someone give me the link please.....or is it not possible for people in the UK to listen?

I'm on the call, in the UK, using Skype

I don't think I'm being charged.

 

[Countrygirl]

Thanks Ritto. My Skype isn't set up at the minute so I hope someone can report back to us.

 

[Nielk]

Can anyone report back to us, please? I could not listen in because of my migraine.

 

[SDSue]

I hung in there for about half. I couldn't understand Montoya most of the time but it seemed to be a rundown of past and current studies?

 

[searcher]

I put up some notes at https://twitter.com/primalWoman. The notes aren't great and there may be mistakes, so if anyone listened and sees any errors in my tweets could you let me know?

 

[halcyon]

Unfortunately I had a really hard time understanding Dr. Montoya, but as best I could tell I didn't hear anything new.

 

[catly]

I half listened in, missed the first 15 minutes. I didn't really catch anything new.

 

[CBS]

I have an audio recording of the entire hour. It needs some editing. Need to run out but hope to post it this evening, assuming that this isn't against any of the forum rules @tina @Sasha

 

[Sasha]

I have an audio recording of the entire hour. It needs some editing. Need to run out but hope to post it this evening, assuming that this isn't against any of the forum rules @tina @Sasha

I don't recognise tina's name (sorry, @tina!) but I'm not in charge of the forums. I'm a nobody (I just talk a lot!).

 

[Sasha]

I have an audio recording of the entire hour. It needs some editing. Need to run out but hope to post it this evening, assuming that this isn't against any of the forum rules @tina @Sasha

@CBS, did you mean Kina? She's in charge of moderation.

 

[nandixon]

I put up some notes at https://twitter.com/primalWoman. The notes aren't great and there may be mistakes, so if anyone listened and sees any errors in my tweets could you let me know?

Something additional Dr. Montoya mentioned that I hadn't heard before - and I couldn't quite catch all he said because his accent was so heavy (although he was very articulate!) - was that they had found a 100% correlation between ME/CFS/SEID and an illness called Systemic Inflammatory Response Syndrome (SIRS)* in some important aspect (cytokines or some other immunological profile??).

*http://en.wikipedia.org/wiki/Systemic_inflammatory_response_syndrome

 

[searcher]

Something additional Dr. Montoya mentioned that I hadn't heard before - and I couldn't quite catch all he said because his accent was so heavy (although he was very articulate!) - was that they had found a 100% correlation between ME/CFS/SEID and an illness called Systemic Inflammatory Response Syndrome (SIRS)* in some important aspect (cytokines or some other immunological profile??).

*http://en.wikipedia.org/wiki/Systemic_inflammatory_response_syndrome

Very interesting, I must have missed that. It would be huge news if they found that strong a correlation!

 

[Wally]

Something additional Dr. Montoya mentioned that I hadn't heard before - and I couldn't quite catch all he said because his accent was so heavy (although he was very articulate!) - was that they had found a 100% correlation between ME/CFS/SEID and an illness called Systemic Inflammatory Response Syndrome (SIRS)* in some important aspect (cytokines or some other immunological profile??).

*http://en.wikipedia.org/wiki/Systemic_inflammatory_response_syndrome

Interesting to look at possible causes of this condition.

Causes
The causes of SIRS are broadly classified as infectious or noninfectious. As above, when SIRS is due to an infection, it is considered sepsis. Noninfectious causes of SIRS include trauma, burns, pancreatitis, ischemia, and hemorrhage.[2][3][4]

Other causes include:[2][3][4]

• Complications of surgery
• Adrenal insufficiency
• Pulmonary embolism
• Complicated aortic aneurysm
• Cardiac tamponade
• Anaphylaxis
• Drug overdose

If you go further to review "adrenal insufficiency" there is a tie in to AIDS and autoimmune thyroid conditions.

For chronic adrenal insufficiency, the major contributors are autoimmune adrenalitis (Addison's Disease), tuberculosis, AIDS, and metastatic disease.[10] Minor causes of chronic adrenal insufficiency are systemic amyloidosis, fungal infections, hemochromatosis, and sarcoidosis.[10]

Autoimmune adrenalitis may be part of Type 2 autoimmune polyglandular syndrome, which can include type 1 diabetes, hyperthyroidism, and autoimmune thyroid disease (also known as autoimmune thyroiditis, Hashimoto's thyroiditis, and Hashimoto's disease).[11] Hypogonadism and pernicious anemia may also present with this syndrome.

 

[SDSue]

I put up some notes at https://twitter.com/primalWoman. The notes aren't great and there may be mistakes, so if anyone listened and sees any errors in my tweets could you let me know?

Thanks for the notes. Nicely done!

 

[Wally]

@searcher,
Thank you for taking a few notes and posting them. I was listening, while driving, so note taking was out of the question.

I was confused when I thought Dr. Montoya said there was a possibility that the illness could be contagious (? not sure if that was the word he used) in some instances, but they just do not know for sure. Did he say or mean to say that this possibility could be seen in cluster outbreaks, but not in non-epidemic cases?

 

[Sushi]

I put up some notes at https://twitter.com/primalWoman. The notes aren't great and there may be mistakes, so if anyone listened and sees any errors in my tweets could you let me know?

Thanks, great!

BTW, that obnoxious news clip from KOAT 7 is my local ABC Affiliate. Local advocates have absolutely broiled the station. KOAT took the clip down very quickly, but that is NOT enough!

Sushi

 

[halcyon]

Did he say or mean to say that this possibility could be seen in cluster outbreaks, but not in non-epidemic cases?

Yes, he seemed to say that while it doesn't appear to be infectious in endemic cases, it does appear to be in epidemic cases.

 

[searcher]

@searcher,
Thank you for taking a few notes and posting them. I was listening, while driving, so note taking was out of the question.

I was confused when I thought Dr. Montoya said there was a possibility that the illness could be contagious (? not sure if that was the word he used) in some instances, but they just do not know for sure. Did he say or mean to say that this possibility could be seen in cluster outbreaks, but not in non-epidemic cases?

Happy to do so. I wish I could have taken more.

I agree it was a little confusing. It seemed like he thought it wasn't contagious except in its epidemic form, so family members/friends shouldn't be worried about catching the illness from patients. Even the epidemic form is not necessarily contagious, but I am not sure what he thinks the cluster outbreaks are (i.e. particularly virulent virus, environmental toxin, etc.)