CJB
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Did the contractor who was moderating the call just say that they sent out an email notification, and will do so again for the next call in December? Does anyone know which email list is she referring to? I think I found out via PR or XMRV Global Action's Facebook page.
the email originally came out through the CFSAC listserv.
The contact info given in the original announcement seemed to be what was repeated in the call: CFSPCOCACall@cdc.gov[/quote]
Thanks, Willow. Yes, I saw that just after I posted (so deleted it!). Thanks for confirming.
I didn't quite catch exactly what Dr. Unger said, but perhaps her comment near the end (so, this is the part you heard) about including "lumpers" with "splitters" being a good idea addresses that question, whereas Dr. Jason seemed to say "lumpers" cause problems with the definition. In general, I didn't hear that any decisions were made about which patients to include, but that they were allowing each clinic to select patients based on their own choice of definitions/criteria...? (I may have missed some of this....? Perhaps someone else can comment on this.)
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I thought it was interesting that perhaps all but one of the questions was directly from Joan Grobstein's list, as posted on the Patient Advocate website yesterday. Her list was excellent, but it makes me wonder if they perhaps only received a couple of emails with questions for the conference call.
That's interesting -- at the start, I think the moderator said there were 100 lines available.btw, there were 70 some ppl on the line when I dialed in
It sounds as though Dr. Unger remains firmly committed to the Reeves approach then. Though Dr. Jason “seemed to say 'lumpers' cause problems with the definition,” she insists on “including 'lumpers' with 'splitters.'” I wonder how she rationalizes her refusal to commit to the test-retest protocol.it sounds like CDC is firmly committed to retaining the current set of patients on their radar including the misdiagnosed ones.
It sounds as though Dr. Unger remains firmly committed to the Reeves approach then. Though Dr. Jason “seemed to say 'lumpers' cause problems with the definition,” she insists on “including 'lumpers' with 'splitters.'” I wonder how she rationalizes her refusal to commit to the test-retest protocol.
I wonder too how she rationalizes her failure to tape this communication.