There is a set called ME. Ember, but more importantly some of the people who wrote the CCC wrote the ICC. The ICC is what we should be supporting I think. It is no small task to get everyone to agree on one definition however. I only see three ways this can happen, but then I am in my usual fog so maybe I missed something.
The first is a scientific breakthrough that gives credence to ICC ME or some other definition. I doubt this will happen but stranger things have happened in history.
The second is some kind of world conference endorsing a definition. Costly, hard to set up, and may require many such to get agreement. It could take many years and I doubt it would be worth it. Don't count on it.
The third, and most likely in my view, is the idea of a
de facto standard. If all the key researchers use one standard, repeatedly, then anything that uses an older and no longer often used standard will be looked at as though it were a pineapple in a box of apples. This may not include Oxford CFS because they are all pears, but the hope there is that with enough science their models will all go pearshaped. Forgive the bad puns.
If all these fail then an agreed name will occur because of the discovery of a core mechanism and biomarkers. The scientists will then give it (or them, there may be several) a new name and we will have a diagnostic test as well. Dubious studies conflating fatigue with ME will then be impossible to publish. Here's hoping.
I would still worry about people who might then have no definition. They will be lumbered with CFS at a time when most of the biomedical research is no longer looking at them. The babblers will have free reign for a while.
A single ME definition in wide use will give the research wings, but it will still have a millstone around its neck until the cause is understood. That millstone is the BPS approaches to CFS. As I have said elsewhere, we get a cure only from biomedical research and we need to push the accelerator on that. I tried to do that off and on since 1993. However, if we don't take the foot off the brake we aren't going to accelerate much. That brake is psychobabble.
Bye, Alex