This is great news. Did your doctor also order tests for VGKC and VGCC autoantibodies?
I appreciate you asking. I have read through many of your older postings on PR and your symptoms, medical findings, and experience with certain specialists is very similar to mine. (Well, except for MCAS. I have been spared from that!)
I have been tested for the VGCC antibodies several times between 2015 and 2018. All blood testing was done at the Mayo Clinic and those particular antibodies always come back negative.
The main VGKC antibody has been negative as well.
Early this year I had an appointment with a *fourth* neuromuscular specialist. This one refused to repeat the 3 VGCC antibody tests associated with LEMS, but she did perform a repetitive stimulation test, which she said was perfectly normal.
I've seen the NCS/EMG results, and they don't look perfectly normal to me, so I'm going to have my local neurologist look them over. I want to make sure we definitively rule out a LEMS or Myasthenia Gravis diagnosis before moving on.