- Fantastic to see this kind of scientific focus on M.E. in/ Canada. Definitely a step in the right direction.
- So appreciate the involvement of patient advocates - and the price they will pay
- It's not just a bunch of researchers with no access to $, but a strategic initiative with the government of Canada, Canadian Minister of Health, & CIHR explicitly involved, luminaries like Dr Moreau with links to the OMF, and multi-center and international collaboration.
- Then again, let's put this in perspective. $1.4M/580,000 Canadians with M.E. (their figures) = $2.41/patient. That's $2.41 Canadian, so about $1.81 USD/patient. So I'm having some difficulty with the fanfare that this will improve the "quality of life" for 580,000 Canadians before I reach my 4th decade with this devastating disease and no approved treatments.
- But it IS a start, a step in the right direction. Let's hope the Canadian government and CIHR gain some sense of urgency to put more "real" money behind this ghastly disease.
Postscript: Wait a minute... the Gov't of Canada press release (link above) said, "This $1.4M, five-year investment aims to improve the quality of life of people living with ME through...."
So am I correct that point 4 above should read $1.4M/580,000 Canadians/5 years = $.48 CAD/patient/year or $.36 USD/patient/year? Or is it $1.4M/year??? People like Dr Moreau and the OMF need more support to get some REAL money. This current investment - if $1.4M over 5 years - will pay for collaboration admin fees, a yearly conference, and maybe some minor research tinkering. Or... maybe like taking your dog to dog training, so YOU can be trained, maybe this money will be an investment to educate the gov't and medical system that this disease is biomedical, devastating, complex, widely prevalent, and desperately in need of a massive investment?
Still a step in the right direction, but a tiny step; am I missing something?