• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To register, simply click the Register button at the top right.

Call You and Yours features Lyme Disease


ME/CFS since 1995; activity level 6?
Cornwall, UK
Well, that was hardly worth waiting for - but I listen every day anyway. There was only about 5 minutes on Lyme from about half-way through (after the news), featuring about 2 people, including a sufferer and a representative of an organisation.

Apparently NICE are updating their guideline in about 10 days' time.

But a quick search only produced this: https://www.nice.org.uk/guidance/indevelopment/gid-ng10007

saying that they expected to publish on 04 April 2018.

If anyone can find anything more relevant or up-to-date, please post it!