Byron White Formulas

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Has anyone ever taken Byron White Formulas? I think I am playing whack-a-mole with viruses and possibly even other things, it's tiring but I've also had bad reactions to famvir and valtrex. Famvir makes me angry and extremely restless, I can only assume it's pissing off a co-infection? I cannot afford to try Valcyte.

So someone mentioned byron white formulas and I had heard of them in the past but initially got confused thinking it was byron hyde which it's not. So has anyone taken these and got better on them? Do you still take them? Looking for a success story of sorts.

Herbal antivirals and antibiotics (tinctures and powders) did work for me in 2018 when I mixed them together, but the formulas are meant to be vastly more potent which gets round the issue of having to ingest a lot of alcohol tincture, which my body and biome really don't like much.

His website says you need a practioner to buy them, so I am wondering if anyone outside of America ever sourced these themselves?

Thanks in advance.
 
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Sorry I haven't used them but if someone has, I'm also interested to know.

Have you tried Lomatium? I have read that it is one of the best herbals for EBV. I have 2 tincture bottles and tried it once but I got so terrible symptoms and rash in my neck that I'm afraid to use it long term.
 
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Lomatium...so I have a glycerine tincture of that which is potent and does work. Problem is when I took that early December it seemed to upset some sort of balance. Must have attacked the ebv I guess.

Or as you say it's a detox reaction. I took the lomatium anyway but I couldn't really think straight. Was incredibly strong. No doubt it was a herx.

In my experience the herx only lasts two weeks but I haven't had much luck getting past it the last two years. Might have to try again.

Hopefully someone else has taken Byron white formulas.

sorry to hear you got the terrible rash, that's horrible. Where did you get the lomatium from btw? Can you link the supplier?
 
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Thanks. I'd forgotten about that one.

I use the planetary herbals brand myself.

So they got back to me. In the UK you have to go via London clinic of nutrition. Unsure if any nutritionist or only their MD Oliver can do it. Anyway i can probably get access to this as I've already been to LCON in 2018. Going to try antivirals again with a different dosing schedule before I give up completely. They are so much more effective than any herbal formula and they work within a few days on the acute symptoms.

Thanks.
 

Shanti1

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I tried Byron White's A-EB/H6 formula geared toward EBV and HHV-6
The directions are to take 1 drop 2 times a week. The formula is promoted as both a regular herbal formula and an energetic/homeopathic formula, hence the low starting dose. The tincture itself is quite strong, but one drop twice a week or even daily didn't stand a chance against my viral load. When I increased the dosing to a more pharmacological dose, I found the Saint John's Wort (first ingredient in the proprietary blend), to be overstimulating, so I abandoned the formula.
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godlovesatrier

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Thanks for the reply.

I had that issue with oxymatrine. But seems like a lot less of that problem with equilibrant.

I have had issues with immune stimulation from tinctures too. Even just antiviral ones. Seems to cause more problems than it's worth. For me anyway.
 

Shanti1

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I have had issues with immune stimulation from tinctures too. Even just antiviral ones. Seems to cause more problems than it's worth. For me anyway.
I should clarify, the overstimulation was more mental, probably from its MAO properties. But yes, more trouble than it was worth. I have done much better with the valacyclovir, but I can see why you are revisiting the antiviral botanicals since I understand that you have had a rough go with the antiviral meds.
 

godlovesatrier

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Yep you've got it in one. Dr Chia mentions immune reaction a lot in his interviews and it got em thinking he may be seeing something other ME specialists haven't seen.

Maybe it's unique to entereoviruses or FM I don't know. But he talks about over stimulation (neurocognitive specifically) but I think he must also mean physical ones too. That is the immune response is SO strong to such low doses that it must be taken into account and he says the medication must then be modulated accordingly.

So it got me thinking if that's a subset of patients then maybe another approach is needed.

Valac is an amazing drug if you ask me. It had rapid and very potent effects. However the very bizarre kidney issues and renal calculi that I get are seemingly extremely rare. I have a lot of drug reactions tbh. Could be another pathogen like Lyme that's doing this.
 

Shanti1

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Yep you've got it in one. Dr Chia mentions immune reaction a lot in his interviews and it got em thinking he may be seeing something other ME specialists haven't seen.
Maybe it's unique to entereoviruses or FM I don't know. But he talks about over stimulation (neurocognitive specifically) but I think he must also mean physical ones too. That is the immune response is SO strong to such low doses that it must be taken into account and he says the medication must then be modulated accordingly.
Both oxy and valac caused low grade fever on introduction that eventually subsided. What is interesting though is there was also a cognitive stimulation that came with it. I usually have hypersomnia, but I had some insomnia when I started these. I could also feel it during the day, it eventually subsided along with the fevers.

Valac is an amazing drug if you ask me. It had rapid and very potent effects. However the very bizarre kidney issues and renal calculi that I get are seemingly extremely rare. I have a lot of drug reactions tbh. Could be another pathogen like Lyme that's doing this.
Do you know if your kidney markers actually showed a decline in kidney function or did the kidney inflammation feeling occur without changes in lab markers? Do you know what kind of kidney stones they were? While drinking a ton of water would be the obvious to help reduce kidney toxicity and stones, if you know what type they were, perhaps other measures could be taken.
 

godlovesatrier

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Hey,

Did you get ant brainfog at all? 1/4 of a Equilibrant tablet produces very bad brainfog, myalgia, arthralgia, bad nausea, diarrhea occasionally, some mild gi upset, and dizziness which does sometimes make me walk into things in the morning when my dose has worn off. Dizziness like this WAS my first and very major symptom of ME. That and terribly shocking fatigue, glass like pain in various parts of the body including the skull and diarrhea and general gi problems. But zero abdominal tenderness which seems to be a huge thing in chias patients.

Good about the insomnia. I do get insomnia but if I take it at 9am I can sleep thankfully. With difficulty sometimes though. I also get restlessness, dizziness brainfog and agitation as I sort of said.

So I went into hospital and the CT scan showed very small kidney stones in the kidneys themselves. Plus liver and kidney function tests that were fine. I was dehydrated and had barely eaten that day so I think that was a pretty good prognosis.

Yeah they don't tell you the type sadly. But I know what you mean. I tried orange juice and lemon juice. The lemon juice helped but I can't drink that every day as I get problems with my dental enamel which I think is a genetic issues to be honest.

Labs after 2 weeks of antivirals were fine. No obvious signs of CKD stage 1. I had reduced markers 12 months ago from high protein diet and egcg I believe.
 

godlovesatrier

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I've just gone back through Dr chias Amy Proal interview again and he says to actually start at 1/8th which I didn't do. Going to do that and hope the brain fog resolves. Although if it's cytokine activity that's causing neuroinflammation meaning all downstream issues like lack of blood flow in brain tissue are worse = brainfog then he seems to give those patients epivir I think. But it's not that clear. Am still trying to find a source for him saying this exact thing somewhere.
 

Shanti1

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Did you get ant brainfog at all? 1/4 of a Equilibrant tablet produces very bad brainfog, myalgia, arthralgia, bad nausea, diarrhea occasionally, some mild gi upset, and dizziness which does sometimes make me walk into things in the morning when my dose has worn off. Dizziness like this WAS my first and very major symptom of ME. That and terribly shocking fatigue, glass like pain in various parts of the body including the skull and diarrhea and general gi problems. But zero abdominal tenderness which seems to be a huge thing in chias patients.
My mental and physical fatigue got worse before they got better. I remember thinking I wasn't going to be able to tolerate the valac. However, my brain fog did not get worse. I noticed a dramatic improvement in lymph node swelling within the first week, and this was my sign that it was working. I also noticed a subtle but steady improvement in mental clarity, and brain fog used to be my worse symptom.

So I went into hospital and the CT scan showed very small kidney stones in the kidneys themselves. Plus liver and kidney function tests that were fine. I was dehydrated and had barely eaten that day so I think that was a pretty good prognosis.

Yeah they don't tell you the type sadly. But I know what you mean. I tried orange juice and lemon juice. The lemon juice helped but I can't drink that every day as I get problems with my dental enamel which I think is a genetic issues to be honest.

Labs after 2 weeks of antivirals were fine. No obvious signs of CKD stage 1. I had reduced markers 12 months ago from high protein diet and egcg I believe.
You prob know, calcium oxylate stones are the most common, followed by calcium phosphate. Vacayclovir/acyclovir can precipitate as crystals in the kidney and cause damage, but I doubt they would be visible as stones on CT. Anyhow, I'm sorry to hear bout the kidney trouble with the valac, that must have been frustrating for you, especially if you felt improvement in other areas.