CFSTheBear
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A Controversial Therapy For ME Has Led To Claims Of Death Threats, Harassment, And Pseudoscience
Buzzfeed journalist Tom Chivers looks into the SMILE trial and the surrounding controversy.
Chivers has spoken to Phil Parker, David Tuller, Jonathan Edwards, and several patients who have gone through the the Lightning Process.
Full article available here.
Buzzfeed journalist Tom Chivers looks into the SMILE trial and the surrounding controversy.
Chivers has spoken to Phil Parker, David Tuller, Jonathan Edwards, and several patients who have gone through the the Lightning Process.
The process, or its practitioners, have made some dramatic claims about its effectiveness. At least one practitioner’s website used to say that it could “help you to completely recover permanently" from CFS/ME with “no possibility of relapse”, and that patients can “achieve full recovery no matter how severe your symptoms are”. Those claims are now gone but are visible on web.archive.org, and were recorded at the time by the charity Invest in ME.
Parker’s own websites apparently used to make similar claims. According to the charity 25% ME Group, Parker’s website once said the Lightning Process allowed patients “to automatically, easily and effectively stop those thought patterns” that he said were “always present” in ME. And lightningprocess.co.uk, which was described as Parker’s personal website, said it contained “stories of those who inspired me with how they used the mind body connection to get over ME/CFS, MS, Depression, Anxiety, Chronic Pain and Eating Disorders and much more”.
Full article available here.