creekfeet
Sockfeet
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bananaman, that's excellent. It's exciting to see local and regional associations insist that something possible big not be allowed to just slip by.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Our new org to fight BACME could be:British Association for Chronic Fatigue Syndrome/ME (BACME)
:Retro smile:Our new org to fight BACME could be:
the British Association of Patients and other Actual Experts on ME/CFIDS against the sham known as the British Association for Chronic Fatigue Syndrome/ME
Kinda snappy, huh?
luckily, BAPOAEMECASKBACME.com is still available.
There is a thread knocking about for it somewhere or other. I seem to remember that, all that aside, it could have been worse.BACME also produced a guide for "healthcare professionals" in August last year overseen by the then chairman Alastair Miller. It was pretty much what you would expect, CBT etc. As I remember it was made available as a PDF and promoted, perhaps inevitably, byAction for ME before they redid their website a couple of months later.
http://www.meassociation.org.uk/201...and-management-guide-for-cfsme-4-august-2015/
Sorry if this duplicates what anyone else has said or I've posted in the wrong place. I'm trying to get the hang of things (usually I'm on Twitter!)