Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Our new org to fight BACME could be:British Association for Chronic Fatigue Syndrome/ME (BACME)
:Retro smile:Our new org to fight BACME could be:
the British Association of Patients and other Actual Experts on ME/CFIDS against the sham known as the British Association for Chronic Fatigue Syndrome/ME
Kinda snappy, huh?
luckily, BAPOAEMECASKBACME.com is still available.
There is a thread knocking about for it somewhere or other. I seem to remember that, all that aside, it could have been worse.BACME also produced a guide for "healthcare professionals" in August last year overseen by the then chairman Alastair Miller. It was pretty much what you would expect, CBT etc. As I remember it was made available as a PDF and promoted, perhaps inevitably, byAction for ME before they redid their website a couple of months later.
Sorry if this duplicates what anyone else has said or I've posted in the wrong place. I'm trying to get the hang of things (usually I'm on Twitter!)