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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Can you supply any further information on this case bohemian?Brisn nichols9n detained injected with all antipshcotics for 3 years still needs help
@Countrygirl Do know what is going on with Brian these days?
I will g8ve a full update as soon as possible but i know brian has been told he is treatment resistant .
Rarely in the annals of recorded medicine has there been such a David and Goliath-like battle, with impaired and sick patients trying to defeat an entrenched medical and scientific establishment. Their story of resistance is not one of an epic skirmish, but rather a veritable war with health care professionals and scientists that has endured for decades, as has been so well documented by Hillary Johnson.
I wanted to bring↑
http://blog.oup.com/2015/09/patients-battle-for-justice/#sthash.q2DRe3R8.dpuf
I just read the above document by Dr Lenny Jason with my first cup of morning coffee and when I read this comment I thought of Brian, Karina and all the others who are facing such traumatic treatment by ignorant and arrogant psychiatrists ................
I will g8ve a full update as soon as possible but i know brian has been told he is treatment resistant and he has features of cfs. Me has been blown out of the window by an exter neurologist even though he still meets international criteria. Does anyone know how much the clozipene industry is worth he is at a hospital in exeter. Brian had help 8n torquay in 2011 when he was told his illness is central psychiatric disease. It all stems back to his initial detention in london in 2009 when they claimed his low sodium was due to polydips8a not the sodium renin system issue and kidney complexities involved with pots and me the insipidus issue. It has cost him his last few years of his life he his rarely allowed to carry water in case he gets told about his sodium issue. Does anyone have any idea of the ren8n system complexities and kidney in m.e.
This is brisn speaking taken to haytor unit torquay again after i was about to be let out they are giving me clozipene again ssying they wont let me out unless i take this drug brian nicholson sectioned again for another 12 months i am tefusing to take the drugs tonight because i nearly collapsed due to this insursance doctor the nueropathy in legs and arms getting worse and nearly wet myself have no hope -hoping countrygirl can help again in formulating some form of big issue being sectioned for so long. Need help from all of you . Kind regards and hope brianI too was accused of polydipsia repeatedly, and it is in my medical records, despite my asserting repeatedly that I am not polydipsic, and completing meticulous fluid charts on request. I had initially gone to the doctor because of polyuria, which is when the assumption of polydipsia began.
It turns out that what caused my hyponatraemia (low blood sodium) was almost-certainly the ACE inhibitor that I had been prescribed for hypertension a few months before my first episode of severe hyponatraemia, and upped to the maximum dose 10 days before it occurred. ACE inhibitors, by inhibiting angiotensin converting enzyme, increase the excretion of both sodium and fluid, yet no doctor made the connection. I finally did, 7 years later, by which time I had suffered another severe episode plus permanent damage to my teeth and a fracture (hyponatraemia increases the risk of fractures, and I suspect that it also causes dental damage).
I have posted quite a lot on this issue.
There is a condition sometimes called cerebral salt wasting, more correctly renal salt wasting, and people with ME do seem to be prone to low salt levels, perhaps through this. I have craved salt all my life, which leads me to suspect that I have had renal salt wasting most or all of my life, and the ACE inhibitor exacerbated this to a dangerous degree.