What if the autoimmunity affects the mitochondria/energy producing pathways in all cells?Only if those cells express the target. An autoinflammatory disease seems more likely for this kind of effect.
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What if the autoimmunity affects the mitochondria/energy producing pathways in all cells?Only if those cells express the target. An autoinflammatory disease seems more likely for this kind of effect.
This isn't my reading of it, especially as the researchers for both ideas overlap.I think this rules out the argument that a metabolic process within the cells is broken though and the cells are shutting down to prevent damage
You donated blood in good faith, attemptingto do good.Does this mean that we contaminated the blood and damaged cells of the one who got it while they were trying to heal?
My feeling is that the problem won't be infectious in that way, in that a particular blood component (e.g. plasma) might introduce a CFS-like blood borne stress on the recipient, but it would be transient, or immediately diluted away
But isn't there a study showing 5% of ME started just after a blood transfusion? Can anyone remember the reference? Is this coincidence?( genetic susceptibility likely required too and maybe they'd have got it anyway post virally or something).
Yes, I forgot that plasma transfusions are also needed for some indications.I think they can also be plasma only. From memory that's what one of mine was when I queried the colour
I think that was KDM
I thought it had also been mentioned somewhere in some study, I may be wrong.
We so need a website which just contains all our studies filed and connections to various areas and also things which may be unpublished but which our top ME specialists have found. There is now days so much research out there that its hard to keep track of it all. Maybe one day the ME/CFS community can think about setting such a website up, it would be invaluable (I'd help)
There is MEpedia which I think fulfills at least in part that function.
When i was in hospital from a ruptured cancer op. I had 9 pints pumped into me using both arms to keep up with my blood loss.
After i'd been stitched up again etc. I felt fantastic considering the ordeal I'd been through.
We at the time thought it was down to the saline drip boosting me, i'm now wondering if it was the new body of blood I received instead.
I was clear headed, relaxed and felt great for a few days, possibly the best i've felt during this illness.
MEpedia is a website being developed by MEAction. It's new and still in development not all the pages are complete and it is a work in progress. It presently lacks enough people to fill it up. I think there is a thread here somewhere on it.
Some people disagree with having all things about ME represented it's true. I believe there is a page for CBT etc. There is some opinion that it should just deal with positive aspects for people to find info on. But I think it is reasonably factual at present.
Although this still may not be quite what you had in mind, it is suppossed to be a repository of ME related info.
See: http://me-pedia.org/wiki/Welcome_to_MEpedia
When i was in hospital from a ruptured cancer op. I had 9 pints pumped into me using both arms to keep up with my blood loss.
After i'd been stitched up again etc. I felt fantastic considering the ordeal I'd been through.
We at the time thought it was down to the saline drip boosting me, i'm now wondering if it was the new body of blood I received instead.
I was clear headed, relaxed and felt great for a few days, possibly the best i've felt during this illness.