- Messages
- 97
- Location
- Glasgow, Scotland
Hi again everyone. I posted a thread a while ago suspecting that I had Lyme disease after experiencing severe, steadily progressing brain symptoms for over two years. But today I got my results from a Western Blot test which came back negative. I am now back to square one with this condition and my GP is completely stumped by my symptoms. Here again is the list of symptoms I've been getting in the order they started...
By far the worst symptom of all now is are these head pains I get when trying to put my head down on a pillow. On just about every part of my head that I lay on, the full weight of my head causes a quick build up of pain on the opposite side. For example, if my right temple area is taking all the head weight, the pain builds up on the left. And if I'm resting on my chin, the pain builds up on the front, top area of my head. As the pain builds up, cracking sounds can also be heard inside my skull. And if I let the pain build up on the one spot for too long, I now get a sudden sharp pain that feels like I've burst a blood vessel. My ears start ringing shortly after this and a stinging/burning pain starts spreading from the affected area. The first time this happened, I panicked and dialed the emergancy services thinking it was a hemorrhage. I now get on average 2-4 hours of sleep a night by taking co-codamols before bed and resting my face area on a pile of folded up scarfs. I'm not sure how much longer I can deal with problem as it is becoming worse like my other symptoms.
When I told my GP about the symptoms above, he talked about referring me to a pain clinic, although I'm pretty sure that won't treat the underlying problem. To me, it looks like there is some sort of swelling or fluid buildup in my brain. I am still waiting on word to see a neurologist which will hopefully be very soon and I can somewhat get to the bottom of it as I really can't take this much longer and need to get some sort of treatment fast.
I've spent my time researching all kinds of brain disorders, diseases and infections but so far this illness I have seems to be the only case of it's kind and no one else seems to be experiencing these particular symptoms. It's looking like something very rare.
Has anyone here experienced symptoms like this or any idea of what this illness could be, many thanks again!
- Flu symptoms at the start
- Persistant tiredness and fatigue (still declining)
- Brain Fog (still declining)
- Headaches (started as a dull pain over entire head region)
- Heart palpitations (Happen at random, acompanied by sweating and chest/arm pains)
- Insomnia (Occasional relapses lasting about 4-7 days each time)
- Vision Issues (Tunnel vision, dimmed vision and slowed reaction time)
- Joint stiffness
- Low alcohol tolerence (Causes drowsiness)
- Anhedonia (getting worse like the brain fog)
- Bloated stomach area
- Frequent peeing during the night
- Dry and thirsty (regardless of water intake)
- Muscle twitches
- Heart PVCs and bigeminy
- Chest pains (often stabbing or pulsating)
- Dizziness
- Ringing ears
- Severe chronic headache
- Severe head pain (NOT a headache) when resting head or pressure is applied
- Neck pain and stiffness
- Numbness with pins and needles in hands and feet
- Brief episodes of pain in arms and hands
- Sudden, short fever attacks
- Hard swelling on side of head (Left temple area)
- Sudden sharp pain in head if pressure (caused by lying head down) is prolonged on opposite side of head
By far the worst symptom of all now is are these head pains I get when trying to put my head down on a pillow. On just about every part of my head that I lay on, the full weight of my head causes a quick build up of pain on the opposite side. For example, if my right temple area is taking all the head weight, the pain builds up on the left. And if I'm resting on my chin, the pain builds up on the front, top area of my head. As the pain builds up, cracking sounds can also be heard inside my skull. And if I let the pain build up on the one spot for too long, I now get a sudden sharp pain that feels like I've burst a blood vessel. My ears start ringing shortly after this and a stinging/burning pain starts spreading from the affected area. The first time this happened, I panicked and dialed the emergancy services thinking it was a hemorrhage. I now get on average 2-4 hours of sleep a night by taking co-codamols before bed and resting my face area on a pile of folded up scarfs. I'm not sure how much longer I can deal with problem as it is becoming worse like my other symptoms.
When I told my GP about the symptoms above, he talked about referring me to a pain clinic, although I'm pretty sure that won't treat the underlying problem. To me, it looks like there is some sort of swelling or fluid buildup in my brain. I am still waiting on word to see a neurologist which will hopefully be very soon and I can somewhat get to the bottom of it as I really can't take this much longer and need to get some sort of treatment fast.
I've spent my time researching all kinds of brain disorders, diseases and infections but so far this illness I have seems to be the only case of it's kind and no one else seems to be experiencing these particular symptoms. It's looking like something very rare.
Has anyone here experienced symptoms like this or any idea of what this illness could be, many thanks again!