Brain Damage is hard to prove even with the best of testing. I think some people with CFS probably have brain damage but its a minority. However, what is very likely is neuroinflamation causing poor brain performance or imbalance.
The fact that some of us have had what seemed to be complete, if temporary, remissions shows that ME/CFS isn't permanent damage; it's just a temporary dysfunctional state. Furthermore, it can switch states in a matter of minutes or hours, so it doesn't involve major cellular changes or deficiencies or excesses. It may be just a change of ratio between a couple of proteins, which in turn alter other things. Switch the ratio back to normal (somehow), and everything goes back to normal.
@crypt0cu1t Sounds like low blood to the brain. You should find a dysautonomia specialist. They are often cardiolgists or neurologists. https://www.dinet.org/ has a list. That should be good for a start. There are also some major hospital centers which are probably even better.
I went to a local cardiologist that runs a dysautonomia center. I don't have all those symptoms. He said I had neurally mediated hypotension, but not POTS. I also had purple hands and feet when I was there.
Sometimes when I get up from activity on my back I will lose my hearing for a minute.
yes!! so much so I am so sorry others are suffering but all the things you describe I just can't do easily and my family is like just sit in a wheelchair (from POTS/lyme) at table for Thanksgiving but I get sooooo overwhelmed with conversation, noise, etc. so easy. I am feeling so upset by it all today and numb. This has been happening hardcore with my brain for nearly 2 years now.