Brain Damage?

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where did you buy the alpha lipoic acid + acetil I cartinine….did you buy it from GMC store I have a lot of brain tingling and stinging??
 
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Brain Damage is hard to prove even with the best of testing. I think some people with CFS probably have brain damage but its a minority. However, what is very likely is neuroinflamation causing poor brain performance or imbalance.
 

Wishful

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The fact that some of us have had what seemed to be complete, if temporary, remissions shows that ME/CFS isn't permanent damage; it's just a temporary dysfunctional state. Furthermore, it can switch states in a matter of minutes or hours, so it doesn't involve major cellular changes or deficiencies or excesses. It may be just a change of ratio between a couple of proteins, which in turn alter other things. Switch the ratio back to normal (somehow), and everything goes back to normal.
 
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@crypt0cu1t Sounds like low blood to the brain. You should find a dysautonomia specialist. They are often cardiolgists or neurologists. https://www.dinet.org/ has a list. That should be good for a start. There are also some major hospital centers which are probably even better.

I went to a local cardiologist that runs a dysautonomia center. I don't have all those symptoms. He said I had neurally mediated hypotension, but not POTS. I also had purple hands and feet when I was there.

Sometimes when I get up from activity on my back I will lose my hearing for a minute.
 

sunshine44

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yes!! so much so :( I am so sorry others are suffering but all the things you describe I just can't do easily and my family is like just sit in a wheelchair (from POTS/lyme) at table for Thanksgiving but I get sooooo overwhelmed with conversation, noise, etc. so easy. I am feeling so upset by it all today and numb. This has been happening hardcore with my brain for nearly 2 years now.